Their Stories

Conversion disorder, Head titubation and Myoclonus

11.12.2021 – uncontrollable muscle spasms and head jerking

11.13.2021 – Muscle spasms in his head and neck. Involuntary head jerking backwards. It's been happening since a few hours after we got the vaccine on Thursday

11.14.2021 – Muscle spasms and uncontrollable head jerking

11.15.2021 – Functional neurological disorder

11.16.2021 – Functional Neurological Disorder? Head jerking. Spasms. Tic

11.17.2021 – In controllable Head jerking, muscle spasms in neck

11.18.2021 – Temporary facial paralysis, mini seizures, Head jerking, muscle spasms

12.9.2021 – He still has the head jerking tic from the first shot. Nothing worse now though

12.12.2021 – He still has the head tic from the first shot

12.13.2021 – Same head tic since the first shot

12.14.2021 – Same tic from the first dose

3.8.2022 – The tic is getting worse. We are seeing a new doctor soon and hope to get in with a neurologist after that. This all started the day he got his first COVID shot. We hoped it would go away, but it has not. We are waiting for an in-person doctor appointment that is coming up.

Fluid replacement, Swollen tongue and Lip swelling

3.6.2021 – Numbness of arm and tingling in face

3.7.2021 – Pain in the left foot next to ankle, shoots to hip.

3.8.2021 – Rush in face

3.10.2021 – Tongue and lips swelling. Tingling in face I vistes the ER twice on Monday. First for a rash in the face and swelling of lips. A few hours later I had a swollen tongue. I was given an IV with cortisone, famotidine and Benadryl

3.12.2021 – Burning sensation in arms, hands. Feeling of Swelling and stretching of face, lips, nose

3.27.2021 – Continue to have mild allergic reactions in the face, nose and mouth. Experiencing more asma attacks than usual.

4.6.2021 – Its been a month since I got the covid 19 vaccines . I continue to have allergic reactions in my face, nose and lips. Still in cortisone and additional medicationTo treat my asthma that has worsen due to the allergic reaction.

Dysmenorrhea, Heavy menstrual bleeding and Menstruation irregular

3.3.2021 – These might not be vaccine related and might be anxiety feelings

3.4.2021 – Some may be anxiety related

3.5.2021 – Body aches are a norm for me

3.6.2021 – Normal body aches

3.7.2021 – Usual body aches and not related to vaccine

3.30.2021 – Not sure if related to vaccine. Could be due to anxiety.

1.9.2022 – Early menstrual cycle with heavier than normal bleeding

1.10.2022 – Early extremely heavy menstruation

1.11.2022 – After receiving my dose, I started menstruating 2 weeks earlier than expected. Very heavy with cramps.

1.12.2022 – Have my period, brought on early by vaccine

Dry age-related macular degeneration, Endometrial thickening and Neovascular age-related macular degeneration

3.17.2021 – Sore throat and lung congestion. It is also pollen season in Texas.

3.5.2022 – Dry macular degeneration in the left eye turned wet. I have to have shots in the left eye for the next three months. Retina specialist office

5.13.2022 – Yesterday I felt nauseated and exhausted and a slight headache. No energy. I think it may have been dehydration. I drank Liquid IV and woke up this morning feeling much better.

7.10.2022 – Diagnosed with nonalcoholic fatty liver disease. Have thickened endometrium and am having a D&C this week.

9.22.2022 – Sore knees, very tired

9.25.2022 – Sore knees

10.13.2022 – Foggy brain, swelling in legs and feet and hands

11.2.2022 – Last week felt very tired, feverish, sore muscles. Headache

12.21.2022 – Right knee swelling. MRI shows problem with patella and cartilage. Seeing a Dr about it. Swelling in legs. Dr checking out veins . Heart is ok Dr office

Cyanosis, Pallor and Kidney infection

3.30.2021 – Still have had brain fog since June 2020

3.31.2021 – I've had the rash and fatigue, brain fog since Covid19 it has not gone away

4.20.2021 – Dry rash still from Covid19 in June 2020

4.21.2021 – Dry Rash from covid in june 2020

5.21.2021 – I rarely suffer from urine infection and got ecoli in my urine. I've been sick after my vaccine twice with diarrhea, stomach issues and been sick like flu with heavy chest, nausea, body aches

5.27.2021 – Been ill will flu covid loke symptoms like fever, chlls, body aches, heavy chest, diarrhea, vomiting. Before that had stomach virus and urine infection. My immune system is very low. urine test no infection felt it must be some virus, took covid te Paramedics called cuz very weak, pale, side of lips turn nlie, violent chills hurt all over. Vitals ok told if i want to to hospital or wait out.

7.17.2021 – A few wks. After the vaccine i got sick with things that i normally don't get dick fron and ended up in the hospital with both kidneys infected and it took a while for me to recover. Now i am still eith exhaustion, some brain fog and panic attack .

Acupuncture, Muscle tightness and Night sweats

1.28.2021 – Swollen lymph nodes on side of injection still 8 days post-vaccinination.

12.8.2021 – After my booster I felt swollen lymph nodes in the axilla of the right arm where I recieved my covid-19 booster. Almost immediately I also got tension & pain in the muscles on the right side between my scapula and spine that is still persisting now. Acupuncture

5.20.2022 – I had COVID-19. Mild symptoms-sore throat, congestion, night sweats.

Burning sensation, Myalgia and Arthralgia

1.25.2021 – My whole left shoulder is aching up to my ear and I also has a burning sensation in my muscle

1.28.2021 – I have a burning sensation in my left shoulder which is the side I received the vaccine

2.6.2021 – My left shoulder feels like its burning all of the time. But its not hot to touch.

2.13.2021 – My left shoulder feels like it is on fire

2.20.2021 – I still have the burning sensation in my shoulder

2.27.2021 – Shoulder burn and fatigue

3.6.2021 – My shoulder all the way up to my neck burn on the inside

Eyelid skin dryness, Vaginal hemorrhage and Eye swelling

4.5.2021 – Hot flashes

4.7.2021 – Irritated eyes - watery and also swollen - may be allergies

12.18.2021 – I also started my period 2 weeks early.

12.19.2021 – Period is 2 weeks earlier than expected and I have soreness under my arms where the injection site was.

12.20.2021 – Spotting with an earlier period from the day that I received Booster. Also tenderness under the arm of injection site

12.21.2021 – I've Noticed breakouts on my face and irritability.

12.22.2021 – Been highly irritable and not sure if it's because I am on my menstrual (came 2 weeks early) started the day I received Booster

12.23.2021 – Again noticing Since I started my menstrual 2 weeks early on day I got my Booster, I've been irritable, couple break outs, and dryness on my eyelids.

3.18.2022 – Menstrual cycle is off

Peroneal nerve palsy, Alanine aminotransferase increased and Motion sickness

1.28.2021 – Ok now- Chills and fever for about 36 hours after vaccine; ok now- some itchy skin now

2.7.2021 – Dry throat; a little sweaty shortly after; all much more mild than first time

2.8.2021 – Dizziness... I almost fell in the shower as I was nauseous and dizzy

2.9.2021 – Itchy skin but doesnt look like a typical rash

2.10.2021 – Dry throat

2.12.2021 – 1st In morning, some malaise and mildly dizzy

2.28.2021 – I went somewhere and they said I had a 99 degree temperature but I have no symptoms. Later I checked and it was somewhere between 97 and 98.

8.14.2021 – Dry allergy like throat which is now gone; 5/21 a little blood in my saliva ( not like 6/20 observed hospital)Follow up ct just done was normal . In 6/20 I had covid pneumonia lungs and 10 weeks later was normal. I had original covid in 3/20

9.30.2021 – 2nd day after booster, 99 degree fever, headache, belching

10.2.2021 – I had the flu shot yesterday and felt like I was car sick, vague lingering nausea. In the past several weeks, I have also had terrible leg cramps and Charlie horses, mainly in my calf with foot drop. I will bring this up to my doct Plan to, at least to ask about checking for deficiencies in blood work

10.8.2021 – Itching skin at night

12.10.2021 – Dry throat for about 10 days last month , some sneezing and mucus; my little red blood spots off and on since my covid 2020; saw doctor today and last CT was clear; negative home covid test then; past medical care;liver still slightly elevated (ALT) PCP

3.11.2022 – I believe I fought off covid on the 3rd day as I was directly exposed in January, then testing negative twice afterwards so there was never a positive test.

Musculoskeletal discomfort, Poor quality sleep and Muscle tightness

12.31.2020 – Tiredness could very well be, due to not sleeping well, and not the vaccine.

1.2.2021 – Kink in my neck on the right side (shot side) could be I slept wrong, I don't know?

1.19.2021 – I dont know if considers chills, Im just cold. And fatigued. Achy on right side of neck down to upper shoulder, the side my vaccination was on.

1.20.2021 – I felt poor early morning and majority of the day, but feeling better now. Ive taken Tylenol twice today.

1.21.2021 – Pain and headache very mild

3.2.2021 – Stuffy, then runny nose today

4.22.2021 – I dont know if this significant or not, but I have periodic ringing in my ears.

1.19.2022 – The past few days just feeling meh. Vertigo feeling, runny nose, tired. Husband just out of quarantine today. I tested negative as of this morning. I just don't know

Pharyngitis and Lymphadenopathy

3.21.2021 – No

3.22.2021 – None. Makes me wonder if I received enough if the vaccine!

3.24.2021 – I havent had any symptoms but I had to say that I had a headache just so I can make a comment. I have had absolutely no symptoms! None! The shot I received was the most quickly given shot Ive ever had! Im not sure that I did receive the vaccine! Can I be checked or verified I am protected?

3.27.2021 – Ive been diagnosed with acute pharyngitis and received medicine to take in a steroid shot.

11.13.2021 – A swollen lymph gland in my neck.

Pruritus and Rash

4.7.2021 – The rash that I stated I had got worse and I had to see Dermatologist. On 4/1/21 I was given a steroid injection and cream. Told it would be better to reschedule my 2nd vaccine an extra week away!

4.21.2021 – Itching on torso and on back up to shoulders. The same thing happened with the 1st vaccine. Went to Dermatologist. After 2nd vaccine, figured out that it must be combination of vaccine and Aimovig medication.

Nasal abscess, Blood pressure decreased and Hypotension

3.18.2021 – Shortness of breath and wheezing. Tiredness.

4.5.2021 – I am due to start my home igg Iv infusions tomorrow, Wednesday and Thursday. Some of these symptoms can be related to cdip- I cant be sure.

4.6.2021 – Slight wheezing

4.7.2021 – Low blood pressure- 92/45

4.9.2021 – Weakness

4.10.2021 – Very sore throat

4.11.2021 – Larayngitis, profuse nasal drip in throat

4.12.2021 – Shortness of breath

5.10.2021 – Increased fatigue. Having trouble staying asleep

5.17.2021 – Copious sinus drainage along with muscle aches all over body

10.4.2021 – Excess sinus drainage and infection

4.5.2022 – Muscle cramps

Feeling of body temperature change, Blepharospasm and Neuropathy peripheral

8.27.2021 – Leg numbness, popliteal pain, pins and needles, warm or cool shooting sensations in leg, other similar strange sensations.

9.2.2021 – Numbness is spreading to arms and other leg. Other symptoms persist. Doctors have no answers. Many are experiencing the same. Are you going to do something about this?!

9.9.2021 – Shooting pains through left leg getting worse.

9.16.2021 – Adverse vaccine reactions getting worse. Doctors do not know how to help because they are caused by a vaccine they do not understand. Why do you even ask when you do nothing? What is this stupid check-in for? You are a farce.

9.23.2021 – Racing heart, insomnia, night sweats from legs. Leg pains and neuropathy subsided for a day or two but then came back.

10.1.2021 – Twitching legs and eye, racing heart

2.19.2022 – Sharp chest pains, pins and needles

Spinal pain, Joint swelling and Paresthesia

9.4.2021 – Back and knee pain. Pain in body here and there.

9.28.2021 – Tingling and pain in back and shoulder on right hand side of body.

10.12.2021 – Stabbing pain, pins and needles sensation in back and shoulder, extreme knee pain and overall pain

10.13.2021 – Extreme pain in right knee and base of spine. Continued pins and needles sensation right hand side of body.

10.27.2021 – Swelling of knee since 2nd injection of Covid vaccine due to inflammation. Appt today with orthopedic dr who administered steroid shot.

Familial risk factor, Autoimmune thyroid disorder and Renal pain

4.15.2021 – The top part of my arm turned red and swelled up for about four days. It was itchy too. It was especially bad around the injection site. Its back to normal now.

5.1.2021 – Kidney back pain, double gravity feeling

5.2.2021 – Kidney/back pain

5.3.2021 – Pain in kidney lower back area and under rib cage on left side

5.4.2021 – Left side pain under rib

10.30.2021 – Felt awful last night - better this morning. Shortness of breath for the last 24 hours

10.31.2021 – Still can't take a deep breath. Even after hitting my inhaler.

11.1.2021 – Shortness of breath

5.11.2022 – Chest pains and lightheaded occasionally

9.19.2022 – I think it's just being tired.

9.26.2022 – Stuffy, runny nose, light cough, headache starting this morning.

12.12.2022 – I was diagnosed with an autoimmune thyroid disorder where I have thyroid antibodies in my blood. Family history of thyroid issues - and years of symptoms- so not related to Covid vaccine.

Bradycardia, Cardiac disorder and Neuralgia

4.20.2021 – Beginning shingles involving right side of head and radiating through nerve paths onvolving right ear, right cheek, and right upper lip

4.21.2021 – On anti-viral *valtrex 3g daily + gabapentin* for suspected non-rash shingles affecting nerve pathways right side head, right ear and right facial area

4.22.2021 – I continue medication to manage 4th day non-rash shingles for right-side head, ear, cheek and right upper lip nerve path pain/discomfort

5.1.2021 – Two brief dizzy spells with residual headache lasting approx. 24 hours each time

10.14.2021 – Heart-related issues. Exasperation of previous afib symptoms. Vascillation between tachycardia with standing and bradycardia when sitting. This flare lasted 6 weeks before cardiologist could manage symptoms with metropolol and flecainide.

4.15.2022 – Orthostatic hypotension and other issues related to Autonomic Dysfunction. Many of these symptoms were evident a few years prior to COVID vaccines. Only now beginning the process of diagnosis. Awaiting appointment at Mayo in MN after neuro referral

Hyposmia, Hypogeusia and Eczema

8.27.2021 – Taste and smell compromised

8.28.2021 – Taste and smell comes and goes

8.29.2021 – My taste and smell comes and goes like I have a head cold or allergies

8.30.2021 – Still experiencing a loss of taste n smell

8.31.2021 – Loss of taste n smell, itchy

9.1.2021 – Loss of taste n smell. Broke out with an eczema like rash about 24 hours ago

9.2.2021 – Still Cold like symptoms with no smell and taste.

9.16.2021 – Stiffness in the neck

9.18.2021 – I feel fine today 24 hours ago I felt horrible but its all gone

9.30.2021 – Rash , headache

12.16.2021 – Loss of taste and smell

9.18.2022 – I still can't taste and smell. Over 21/2 years now.. I had COVID in April 2020 for over a month since then I have chronic cold symptoms and my asthma is worse than ever? I still go to work but I can't make a full week absent a lot of times Chronic

Hypoesthesia, Paresthesia and Pain in extremity

4.20.2021 – Yes, a little tingling / tightness on the left side of my face. This happened the last time I took the vaccine. Its not as strong as it was the first time.

4.21.2021 – My face is feeling tingly, tight with numbness particularly on the left side. This happened the 1st time I took the shot after a few days. I went to urgent care last time, but they didnt do anything but just ruled out stroke or any other issues. I dont like this... feeling

4.23.2021 – A lot of pain in arm last night

Loss of personal independence in daily activities, Rash erythematous and Rash pruritic

1.17.2021 – Felt nauseated a few minutes after receiving vaccine. Lasted about 15 minutes then disappeared. None since.

1.29.2021 – Developed a large (approx. 4-5) red, swollen, itchy, somewhat painful area on my arm where I received vaccine

2.5.2021 – Rash expanded to my lower back area, very itchy, but improved today. Also developed rash on upper chest and arms. The rash appears like small rosey spots, not raised or swollen.

2.12.2021 – The upper part of my left foot from toes to ankles became itchy, red and swollen. Put benadyl on the area. Slightly red and swollen but not titchy anymore.

2.25.2021 – Had 2nd vaccine on Sunday, 2/21, developed fever up to 100.8, nausea, indigestion, arm pain, weakness ( had to be helped to stand and helped into bed), could not sleep because of various before mentioned symptoms. On Monday, had fever all day, very fatigued, no appetite, slept most of day , had chills, slept all night, fever abated By Tuesday afternoon. Wednesday still fatigued but generally felt better and stronger. Still no appetite.

Skin burning sensation, Renal pain and Muscle twitching

3.26.2021 – Teeth chattering

3.27.2021 – Ringing ears, burning feeling.

3.28.2021 – Lymph node pain, ringing ears, weakness in arms and legs, blurry vision.

3.29.2021 – Lymph nodes swollen, burning at back of skull, hurts to turn head, kidney pain, weakness.

3.30.2021 – Lymph node pain, muscle twitching, nerve pain/burning in back of lower scull and behind ears, dizziness.

4.1.2021 – Tingling in right toes, foot and leg. Shortness of breath.

4.2.2021 – Numbness in foot

4.9.2021 – Tingling in left arm, hands, leg and foot. Headache. Ringing ears. Tiredness and weakness. Low fever.

5.9.2021 – Tingling in fingers, hand, arm, legs and feet and toes.

Abnormal menstrual clots, Cognitive disorder and Sinus pain

4.25.2021 – Itching on my legs

4.27.2021 – Itching

5.20.2021 – Really heavy menstrual period with blood clots and heavy cramping. This is highly unusual.

10.21.2021 – Pressure on chest, rattling in lungs, shortness of breath, headcold symptoms

12.2.2021 – Tested positive for COVID-19. Sore throat, fever, chills, body aches, loss of smell, sinus pain, earache, headache, brain fog, diminished cognition, cough, sneezing, diarrhea, stomach cramps, shortness of breath

3.5.2022 – Fever, chills, night sweats, insomnia, anxiety

Neuropathy peripheral, Blood glucose increased and Gastroesophageal reflux disease

4.26.2021 – Extremely high blood glucose readings Spoke with physician at vaccination site

4.27.2021 – Extremely high glucose readings

4.29.2021 – High glucose readings; Very painful neuropathy the arm/hand of the arm I was vaccinated in. Experienced neuropathy in both lower legs/feet for an hour today My doctor's appt is tomorrow afternoon.

4.30.2021 – High glucose readings, Neuropathy in atm/hand of arm that was injected

5.1.2021 – High glucpse, chest pain upon any activity

5.2.2021 – Chest pain with any activity, neuropathy in arm/hand/foot/leg on side of injection

5.4.2021 – Chest pain with any activity

5.10.2021 – Severe acid reflux

5.17.2021 – Numbness and loss of walking on left side of body one morning which proceeded to not being able to stand up at all.

5.24.2021 – Extreme fatigue, increased headaches, diarrhea

5.31.2021 – Pain in calves & lower back Upcoming appt

11.3.2022 – Headache, fatigue, nausea

Optic nerve disorder, Optic neuritis and Visual field defect

3.27.2021 – Optic neuritis in left eye started about 3/7. CT scan 3/13 due to darkening vision loss. Optic nerve swelling. Angiogram 3/15. MRI 3/19 showed swelling. Steroid infusion March 3/20. Prednisolone since 3/20. My other eye is blind since infancy.(b)(6)

3.28.2021 – Optic neuritis

3.29.2021 – Optic neuritis continuing

3.30.2021 – Visual symptoms continue; holes in vision field; treatment cont

3.31.2021 – Optic neuritis continues

4.3.2021 – Optic neuritis continues.

Hunger, Blepharospasm and Menstruation delayed

3.12.2021 – Anxiety

4.2.2021 – More hungry than usual

4.3.2021 – The worst migraine I've ever experienced

4.4.2021 – Pain and tenderness on armpit on same arm of the injection site.

4.5.2021 – Migraine turned into a sinus infection; still pain on underarm

4.7.2021 – Painful headaches

4.9.2021 – Eye twitching

4.30.2021 – Abnormal menstrual cycle

7.4.2021 – Late period

10.1.2021 – Swollen underarm lymph node after flu shot.

12.10.2021 – Swollen, painful lymph node on underarm of injection site

12.11.2021 – Extremely painful and swollen lymph node at injection site

12.12.2021 – Extremely painful and swollen lymph node at injection site.

12.13.2021 – Extremely painful swelling of lymph node at injection site

12.14.2021 – Painful and swollen lymph node at injection site

1.15.2022 – Acid reflux, migraine, nausea

12.9.2022 – I'm pregnant and recovering from a bad cold

Cold sweat, Somnolence and Musculoskeletal stiffness

4.4.2021 – 12 hours after 2nd shot I had cold sweats and almost fainted. Went to bed and had Headache, Muscle and body aches, tired, and a general felt unwell till about 24 hours after shot. Head a headache for the rest of the 2nd day.

5.20.2022 – On the first day I had severe chills. On the secondary I slept all day

5.22.2022 – My shoulder where the injection site was is still a little tiny bit stiff

8.14.2022 – Fever, Fatigue, cough, bodyaches, and runny and stuffy nose

Eye discharge, Swelling and Hypersensitivity

4.12.2021 – Been getting progressively worse allergy symptoms the last few days. (Goopy eyes mostly and some nose). I dont normally have allergies and even when I do my eyes dont do like this.

4.19.2021 – Arm will have a red spot. The red spot will go away but then come back. Has happened several times. Its back and bigger than before. This time Its 3inch diameter, sore, hot and swollen. Im also extremely achy and tired today.

4.26.2021 – The other night I had pain around the injection sight that when I moved hurt from my arm mussel down to my elbow and into my arm.

5.3.2021 – Mild pain in injection sight and arm.

5.21.2021 – Bad reoccurring diarrhea. Started shortly after my last checkin. Continued reoccurring fatigue and joint pain.

5.29.2021 – Occasional pain where the shot was given. Occasional diarrhea. Occasional aches and pain. Reoccurring headache this week.

6.5.2021 – Mild pain a few times in arm at injection sight and surrounding muscle

Injection site discoloration, Injection site discomfort and Injection site bruising

3.9.2021 – Soreness but not pain at injection site - but less than yesterday. Yesterday I also had some brain fog along with the fatigue. Tired today also although less than yesterday

3.10.2021 – Not sure if the fatigue is due to vaccine or not as I have experienced this kind of fatigue in the past

3.11.2021 – I am black & blue at the injection site since the injection

3.12.2021 – I dont have redness at injection site but I do have a good sized black & blue mark;

3.14.2021 – Black & blue at injection site.

3.15.2021 – Black & blue at injection site; slowly resolving

3.22.2021 – Not sure about this symptom and whether its related to vaccine. It feels like the area where my underarm lymph node on vaccinated arm might be bothering me a little. But not sure its lymph or muscle ???? Unsure about this

6.7.2021 – Daily headaches for last 3 weeks but dont know if its related to vaccine, allergies or something else

11.4.2021 – Don't think it's related to vaccine; possibly allergies or change in weather/temperatures

Mental disorder, Nervous system disorder and Breakthrough COVID-19

4.19.2021 – Ringing ears -red left eye

4.21.2021 – On Monday after my check in and through Tuesday mid-day I was having dizziness and some mild confusion- I fell 3 times from syncope type syndrome- this is unusual for me and has since resolved

5.13.2021 – Some fatigue- could be allergies

5.27.2021 – Unrelated stomach virus I believe

10.14.2021 – Enlarged lymph nodes - break through Covid- neurological issues- psychological issues

4.16.2022 – Septal infarct showed on EKG following booster - cardiologist was not sure if this was endocarditis following vaccine or from break through Covid case-had visit to ER for chest pain after Booster

Mental impairment, Bursitis and Mobility decreased

10.1.2021 – Before Check-ins started, had 36 hours after shot with site soreness, extreme fatigue, headache. In bed for whole day unable to think. So the worst was sept25, day after booster in afternoon. Nowhere else to report but wanted to file data.

10.22.2021 – Pervasive but mild headache

10.29.2021 – Persistent headache

4.24.2022 – VERY sore at injection for 3 days. Very fatigued and fuzzy day after injection. Lasted 24 hours. Now fine.

5.12.2022 – I have a cold. chills, congestion, coughing, fatigue, inability to think. I took 2 at-home Covid tests that were both negative.

5.19.2022 – Congestion, headache, low energy. Negative at-home Covid test yesterday.