Their Stories

Induration, Muscle tightness and Urticaria

2.4.2021 – Swollen lymph node injection side collarbone

2.5.2021 – Swollen lymph node left collarbone/clavicle same side as injection

2.12.2021 – Injection side, Left supraclavicular lymph node swollen to 2 cm... slightly larger than it was when it appeared day 5 after first dose of Moderna vaccine. Not tender any longer, but hard. Exactly 14 days post 1st vaccine today.

2.20.2021 – Left/shot side supraclavicular lymph nodes STILL swollen... 3 weeks after first dose

2.26.2021 – Tight trap muscle and neck in left/injection side. Still swollen clavicle lymph nodes

3.3.2021 – Left/shot side clavicle lymph nodes swelling up again

3.4.2021 – Left/shot side clavicle lymph node swollen to size of grape

3.5.2021 – Left/shot side clavicle lymph node swollen

3.7.2021 – Swollen lymph node left/shot side clavicle

3.10.2021 – Left/shot side clavicle lymph node still swollen

4.2.2021 – STILL SWOLLEN left/shot side clavicle lymph node

11.24.2021 – Migraine for 2 days straight

11.30.2021 – It needs to be added. Headache for 12 days straight.

12.14.2021 – Full body hives for 4-5 days right at the 3 week after booster mark. 90% gone now

Rubber sensitivity, Musculoskeletal disorder and Presyncope

1.8.2021 – Episode of weak rubbery sensation in lower legs lasting about 2 hours very unusual

1.9.2021 – Worsening of underlying gerd

1.27.2021 – Muscle weakness

2.23.2021 – Fatigue and rly abdominal cramping for 24 hours

3.9.2021 – Had a near fainting episode late afternoon possibly related to low fluid intake. Became very nauseated, faint and dizzy had to lie on floor for 5 minutes or more and then 1 to 2 hours to recover never had an episode like this ever before

4.27.2021 – Intermittent chest pain with GI symptoms of reflux symptoms mimicked a heart attack but were more musculoskeletal and also refux

7.27.2021 – Continued gastric problems and left sided chest pain

10.30.2022 – Allergic symptoms itchy eyes, clear runny nose

Trichorrhexis, Taste disorder and Parosmia

3.9.2021 – No

3.13.2021 – Noticed taste is different on some things.Started yesterday or maybe the day before.

3.16.2021 – I normally have very healthy hair. Had covid in November and shortly after that my hair is very tangled and breaks off. Not falling out.

3.31.2021 – Cramping in leggs

4.6.2021 – Hair is very brittle. Very healthy before covod

6.29.2021 – Smell cigarettes a lot. This was a symptom I had towards the end of covid. Nobody on my household smokes and not around cigarettes. My husband has same.

Edema peripheral, Axillary pain and COVID-19

9.19.2021 – Last night was aching and very tired went to bed early. Felt better this morning

9.20.2021 – I had a mastectomy 4 yrs ago and my underarm is quite swollen and sore this started on Saturday evening. Not sure if this is coincidence or a result of missing 7 lymph nodes on that side Will have visit and sonogram with oncology surgeon tomorrow

8.15.2022 – Had COVID 7/1-12

12.4.2022 – Yesterday evening I ran a low grade fever - took Tylenol and went to bed better today

Somnolence, Pyrexia and Fatigue

3.25.2021 – Very tired and sleepy. I received the vaccine at 830am this morning and I feel so tired. Slept from 12 noon to 4 pm which was a great nap but now Im very tired but want to rest

3.27.2021 – Just the very major headache for the past 3 days. I have had very bad headache today which caused me to be tired and uncomfortable.

3.28.2021 – Headache has improved but still have. Tired in afternoon and need nap. For example I spelt 3 1:2 hours this afternoon.

3.29.2021 – Woke up with no headache this morning. Still feel somewhat tired. Took nap this afternoon for almost 4 hours.

3.30.2021 – Slight headache but very very mild

4.15.2021 – Very tired. Headache starting to become more intense. Received shot at 8am this morning. By noon I was extremely sleepy and fatigued. I spelt from 12 noon to 630pm.

4.17.2021 – Symptoms are very mild and the second shot did not effect me as bad as the first one. The fatigue is what is making feel like Im not well. Feel very tired.

4.19.2021 – Feeling tired but should be ok

4.22.2021 – Still feel a little fatigued and I have been resting good at night but still feeling somewhat tired in afternoon

Menstruation delayed, Dysmenorrhea and Tenderness

6.2.2021 – My period arrived 9 days late with debilitating cramps that lasted all day. I am usually early, am definitely not pregnant, and rarely have cramps that last more than an hour. Vaccination is the only thing that is different.

12.2.2021 – Lymph node/armpit on the side I got the shot is tender and painful

12.3.2021 – my armpit/lymph node on the side where I got the shot is still tender, but fading.

9.25.2022 – Lymph node pain/swelling under the arm where I got the shot

Blood bicarbonate increased, Erythromelalgia and Derealization

1.22.2021 – Lightheadedness

4.1.2021 – Dissociation/derealization In office visit with psych and PCP

8.22.2021 – Autonomic dysfunction

12.1.2021 – Groggy/brain fog, ear fullness, head & facial pressure, EXTREMELY red & splotchy/discolored hands & feet

12.22.2021 – Elevated bicarbonate, low urine output, hypersomnia, lightheadedness, elevated glucose

12.28.2021 – Inner ear and throat pressure

1.4.2022 – Worsening dysautonomia, worsening lightheadedness, worsening erythromelalgia, tonsil stones (all of these conditions are ongoing or recurrent)

1.11.2022 – Menstrual period was one day late, heavier, lasted longer, and my typical hygiene products did not fit as comfortably as they normally do

3.2.2022 – Worsening back and neck pain, uncontrollable heart rate & blood pressure, edema, low potassium

Nephrolithiasis, Oral herpes and Abdominal pain upper

4.9.2021 – I developed a cold sore approx. 30 hours after my shot. I usually have an outbreak every 12-18 months. I have not had an cold sore in well over a year. This cold sore was unusual because it didnt occur in the usual place on my lip, the typical pre-outbreak tingling sensation was barely perceptible and it developed very quickly (quicker than usual). I also did not have the usual triggers of sun exposure, stress or lack of sleep. I am not taking any medication including Valtrex which I usually take when I feel the tingling sensation/cold sore forming.

4.10.2021 – Still have a cold sore as reported yesterday.

4.11.2021 – Still have a cold sore as previously reported

4.12.2021 – Unusual cold sore as previously reported.

4.13.2021 – Still have unusual cold sore as previously reported.

12.17.2021 – Intermittent stomach pain

12.31.2021 – Sore throat, intermittent cough, congestion

12.15.2022 – Passed a kidney stone 4 days ago

Sialoadenitis, Renal impairment and Rash erythematous

2.20.2021 – On Day 9 my arm got very red, extremely itchy, and tender to the touch. This rash/redness covered most of the top of my arm, inward, about 3.5 inches in length. Benadryl and topical creams helped for short periods. The rash started fading yesterday.

2.27.2021 – Dizziness, vomiting, headache. I was started on Voltaren for arthritis and symptoms started after just 5 doses, so it may be the culprit. I had a negative covid test.

4.10.2021 – Infection of the parotid gland. Covid test was negative.

6.6.2021 – My blood work shows I am having problems with my kidney function. Last July, it was normal. My doctor is hopeful this is caused by a new medicine I started in December, so she took me off it to see if my kidney function improves.

Cardioversion, Cardiac ablation and Atrial fibrillation

1.27.2021 – I had a yearly check with doc 2 days after vaccine. Gave me 2nd dose of pneumonia vaccine. Hubby says it makes the Covid vaccine less effective. True? Do you still want me to do this study?

2.6.2021 – On day 9 my arm was sore, red, and painful below the injection site. It is getting better, but still red and swollen. Now itching. I did receive my second pneumonia vaccine 3 days after my moderna when I went to dr for yearly checkup.

2.21.2021 – Severe watery diarrhea. Needed potassium supplement

2.22.2021 – Major diarrhea....needed prescription k-tabs for light headedness

10.12.2021 – No

4.12.2022 – A-fib, cardiavoversion procedure in March, cardiac ablation scheduled in May

4.15.2022 – A-fib, cardiacoversion (shocked my heart back into rhythm. Scheduled for electro cardiac ablation. See my electro cardiologist May 3.

6.29.2022 – A-fib. Had my heart shocked back into sinus rhythm and had cardiac ablation yesterday.

Rash erythematous and Rash

5.12.2021 – I have developed a random rash all over my body about 10 days after my second vaccination. It has been 2 weeks and the rash is still fully on. I am contemplating seeing a dermatologist. I have pictures of the rash.

5.19.2021 – I have developed all body rash 9 days after my second vaccination. The rash is still there. I have pics available.

5.29.2021 – I still have all body rash, focused on my left leg and left trunk that i developed 9 days after my second vaccination. It appears that it is very slowly starting to fade and scale over.

6.2.2021 – I continue to have large red patches of rash on my body, trunk and legs. They first developed about 9 days after my second vaccination. They are very slowly starting to go away and scale over.

Edema peripheral, Axillary pain and Rash

3.3.2021 – My armpit associated with the arm where I received the injection has been swollen and sore the last two days. I forgot to mention it yesterday but it is not as bad today as yesterday.

3.14.2021 – I developed a rash on my back this past Tuesday March 9. It is still there.

11.24.2021 – Headache and fatigue for 3 days but okay now.

5.28.2022 – My armpit is swollen

5.30.2022 – my armpit is still swollen

5.31.2022 – swollen armpit that seems to be improving.

6.1.2022 – Arm put is still swollen but improving

12.5.2022 – Runny nose, sore throat, headache. I tested negative for covid. I think I have a cold. I don't feel that bad.

Full blood count decreased, Systemic lupus erythematosus and Cardiac disorder

1.22.2021 – No

4.15.2021 – Headache. And pain in legs

7.20.2021 – From my private insurance.

7.22.2021 – Lupus

8.22.2021 – I tested positive for COVID. I am waiting for the doctor to call me because I have lupus and many more things that affects my immune system. Took test and I am postive for COVID-19

10.15.2021 – Had COVID-19 Doctors office

3.12.2022 – Heart Problems and my blood count was 6.4.. I was in the hospital for a couple of weeks

6.12.2022 – Low blood count, 6.5. There was something wrong with my heart. Spend 2 weeks in hospital.

12.11.2022 – Lupus Flair and blood count under 10 , so I get Procrit shots about every 2 weeks. On top of that I have arthritis. Have a hard time getting around.

Vein discoloration, Connective tissue disorder and Muscle atrophy

4.5.2021 – My heart has twinges every one to two minutes..this is new. At time of injection I did have sudden chest pressure and difficult breathing.

4.12.2021 – Edema in legs. Irregular heartbeat and pressure since the Moderna injection. How long will this last? (b)(6). I will be scheduling a doctor appt.

4.19.2021 – High blood pressure and fast heart rate while resting..160/88.. Heart 120. Usually have low bp of 107

6.6.2021 – All new symptoms since vaccination..peripheral neuropathy, extreme muscle weakness, no appetite, lost 10 pounds, yellow diarrhea for the last 5 weeks. Ears ringing, vivid dreams. Any advice?

9.7.2021 – Muscle atrophy has caused problem with hips, knees, shoulders and TMJ. Going through physical therapy. Skin on face feels tight. Left ankle swells and blue veins. NONE of these issues prior to Moderna. I am willing to testify against approval by FDA Also acupuncture and physical therapy..the above visits occured over past 6 months after the vaccine. 12 + doctor appointments.

3.9.2022 – Extreme dizziness when standing. Tmj. Muscle weakness High heartrate. Neurologist said it is circulatory. Constant headache and nightly vivid dreams. These conditions started after the vaccine. Also connective t issue/muscle weakness.

Pulmonary mass, Deep vein thrombosis and Pulmonary embolism

3.18.2021 – Shortness of breath with any exertion or activity

3.19.2021 – Shortness of breath with any activity

3.20.2021 – Shortness of breath

3.21.2021 – Shortness of breath, breathing hard with any activity

3.23.2021 – Shortness of breath with any exertion or exercise

3.24.2021 – I am in the emergency room because I have developed a blood clot

3.25.2021 – My shortness of breath continues and I have both dvt and pulmonary embolism. I needed to be put on blood thinners, pain medication and treatment for nausea.

4.1.2021 – Pain from the blood clots and headaches

4.22.2021 – Pain and shortness of breath from blot clot

4.29.2021 – The blood clot in my leg is causing increasing pain and swelling. I have to limit myself to zero activity because of the leg pain, migraine and nausea. Pfizer sure doesnt give a crap.

5.6.2021 – I am having swelling in my leg from the blood clot

5.13.2021 – Lots of swelling today in my leg with the blood clots

5.20.2021 – I have more pain and swelling in my leg where the dvt is

7.8.2021 – Extreme pain in my calf from the blot clots

10.7.2021 – My recent ctscan indicates I have a nodule in my lung now

Blood cholesterol increased, Pain of skin and Productive cough

4.16.2021 – Diarrhea. Sat. April 10th

11.3.2021 – last night- skin hurt, slight chills-over heating, and sore muscles- neck back foot!

5.3.2022 – Covid 19 symptoms, home tested positive for covid 19 Symptoms included Sorenthroat Cough- dry for firstb3 days, wetter days 4-8 1 day of fever, several days of aches Fatigue 2-3 days of nausea after dinner 1 day of diarrhea

10.21.2022 – 4/15/22. Tested positive for Covid-19. Daughter positive via PCR test a few days earlier. My symptoms: fatigue, runny nose, cough, aches, headache. Fatigue aches and cough for a week to 10days. Fever 1 day (home test day). No paxlovid. Cough2 weeks

Muscle swelling, Edema peripheral and Axillary pain

4.4.2021 – Slight bicep swell and slight pain in armpit of arm that took injection (left arm).

4.5.2021 – Left armpit swollen. Not as bad as yesterday

4.6.2021 – Soreness in armpit... very minor compared to previous day.

11.24.2021 – Pain near left armpit

11.25.2021 – Pain/Swelling in left armpit (increased overnight, but now reduced)

11.26.2021 – Pain in left armpit... diminished compared to yesterday.

11.27.2021 – Swelling in left armpit... decreased from yesterday.

11.28.2021 – Very minor soreness in left armpit.

Dental operation and Oral pain

4.6.2021 – I got dental surgery about a week ago and all the parts that werent completely healed over are inflamed again

4.7.2021 – Dental surgery stuff still hurts extremely bad in places, went for my follow-up this morning and dental assistant said the sore parts did look unusually agitated considering Ive done everything right over the last week. I told her about my vaccine response and she put it in both my dental notes and her general notes for further research.

Cardiac ablation, Supraventricular tachycardia and Hypoesthesia oral

3.11.2021 – A little dizziness a few minutes after shot. Ok after about 40 minutes.

3.12.2021 – Lightheaded

3.13.2021 – I woke during night with severe headache. Took naproxen. Slept VERY hard. Felt fine this morning.

3.16.2021 – Aches are normal for me. Doubt it's from vaccine.

3.18.2021 – Normal joint pain. Probably not from vaccine.

4.10.2021 – My lower lip was numb first night after vaccine.

4.14.2021 – Lower lip is still numb on and off

7.8.2021 – I caught a common cold

4.8.2022 – SVT tachycardia ablation.

6.17.2022 – Something going on with my heart again, some tachycardia. In touch with electrophysiology cardiologist and wearing a heart monitor again. Ziopatch again

Menstrual clots, Abnormal menstrual clots and Oligomenorrhea

5.20.2021 – Lightheaded

6.11.2021 – Fever, insomnia, swollen lymph node

6.12.2021 – Swollen lymph underarm (very painful), menstrual cycle started again (had ended earlier this week )

6.13.2021 – Underarm swollen painful lymph nodes, menstrual cycle irregularities

6.14.2021 – Very heavy menstrual flow and cramping

6.15.2021 – Extremely heavy menstruation with large clots

6.16.2021 – Extremely heavy menstrual flow with large clots

6.17.2021 – Extremely heavy menstrual flow with large blood clots

7.8.2021 – Non stop menstrual cycle since the vaccine.

7.15.2021 – Irregular menstrual cycle

1.14.2022 – Fever

1.15.2022 – Fever, chest soreness, entire left arm sore (injected arm), swollen underarm lymph nodes

1.16.2022 – Sweating, fever

1.17.2022 – Neck stiffness, ear ache

1.18.2022 – Joint weakness (fingers)

4.14.2022 – Irregular menstrual cycles

Eye operation, Retinal detachment and Impaired healing

2.14.2021 – Watching. Might be starting a UTI. No temp but a little pain when voiding.

2.15.2021 – Had to go to Dr and get antibiotic for a UTI this morning. For Covid symptoms everything is ok. No problems.

2.16.2021 – Tested positive for UTI yesterday. On medication for it but hasnt kicked in yet. Not due to vaccination.

8.12.2021 – I had to have eye surgery for a detached retina on July 6th. It is healing slowly but healing. Office visit on June 30th to diagnose. Then surgery to repair in an outpatient center on July 6th.

Eczema, Balance disorder and Nausea

1.30.2021 – I awoke at 5:00 a.m. to urinate and realized I had no balance. I was ataxic to the right side. I had been up at 2:00 a.m. and was fine. Anyway, worried about a strong (although I take Eliquis for atrial febrillation) my wife too me to the ER. I had an MR and MRA and checked out fine. I have less ataxia this afternoon at 3:00 pm, but are still a little dizzy and nauseated. See previous note.

2.23.2021 – These symptoms have been going for about 3-4 days. I didn't report them yesterday, because I was in a hurry. I have eczema, also, and I believe that my eczema has acted up, especially over my face, head, neck, upper back and hands.

Axillary mass, Edema peripheral and Abdominal pain upper

3.31.2021 – I have had tummy aches in the last 3 evenings and diarrhea everyday since my vaccine

4.26.2021 – Skin being itchy

12.5.2021 – Swollwen lymph node in my armpit on side i got the vaccine yesterday

12.6.2021 – A sore lump in my armpit where i got the vaccine

12.7.2021 – Lump in armpit that is sore in the same arm that i got vaccine in

12.8.2021 – Lump in armpit of arm that got the booster shot

12.10.2021 – Lump in armpit on side that i was given the vaccine

12.11.2021 – A lump in my armpit of the arm where i got the injection

1.1.2022 – I still have the lump in my arm pit of the arm i got my booster shot in it is very small and is continuing to shrink but its not gone yet. Should i be worried

1.10.2022 – Lump in my armpit of the arm i got the booster shot in

1.17.2022 – I still have the lump in my armpit of the arm that i got my booster shot in. It showed up on december 5th and was sore and big and it has continued to get smaller but its not completely gone yet

Dysmenorrhea, Heavy menstrual bleeding and Menstruation irregular

5.9.2021 – Got my period when its only been two weeks since the previous one! Also, my previous one was much heavier than normal

5.28.2021 – Severe and persistent migraines for two continuous days during my period. These had subsided in the last year but this time they were vengeful. Took 8 advils a day and only got to dull the pain somewhat. My period also lasted 1 week instead of 4 day

8.5.2021 – Severe cramps and unusually heavy bleeding during my period.

Tendon calcification, Tendonitis and Arthritis

3.30.2021 – Muscle soreness arm opposite to injection.

3.31.2021 – Temperature returned to normal range 97.5, peak yesterday was 98.8

4.1.2021 – Upper arm pain and stiffness on side opposite injection had worsened. Taking ibuprofen which seems not to be of much help.

4.2.2021 – Went to urgent care yesterday X-rays take of left upper arm and shoulder preliminary diagnosis of calcific tendionopathy. Awaiting feedback from x-ray specialist and have scheduled with my primary care for next Friday.

4.4.2021 – Inflammation left rotator cuff opposite arm from injection site. From urgent care visit seems pre-existing calcific tendionopathy

Injection site swelling, Injection site pruritus and Injection site erythema

3.19.2021 – 9 days after vaccination, my arm became swollen and itchy a couple of inches below injection site. Mild achiness in arm. This lasted for a couple of days. There is still slight discoloration, but that is decreasing.

3.26.2021 – Minor itching, swelling, and redness centered a few inches from the injection site. This was a few days after the occurrence described in my last report. Very minor pain in that arm. Symptoms were less severe than previous occurrence. Lasted 2 days.

7.4.2021 – Achiness. From a family with arthritis, so it's possible that I am experiencing onset, but the aches are similar to those experienced after vaccination.

Feeling hot, Insomnia and Nasal congestion

3.7.2021 – Arm felt warmer

4.2.2021 – Difficult getting comfortable sleeping.

4.1.2022 – Cold symptoms, body ache, sore throat, congestion and lingering cough.

5.10.2022 – Caught cold from grandson, sore throat, nasal congestion, cough. Worst condition is body aches and fatigue.

7.12.2022 – Cough, sore throat, congestion, fever, fatigue, and body aches. Twice, first starting on 5-16-22 for two weeks and a second time (testing positive) 6-18-22 for 10 day's. Same symptoms both times.

Nerve compression, Bronchitis and Lymph node pain

1.1.2021 – Shot was given on left arm. Now by left armpit, I feel some discomfort. Feels like possibly a lymph node is swollen/affected.

1.2.2021 – Armpit lymph node is inflamed and hurting. May seek medical care if it persists. Texted a nurse friend. May go in to urgent care if it persists.

1.3.2021 – Lymph node under armpit pain

1.4.2021 – Note prior reported enlarged lymph node is actually pain due to a pinched nerve confirmed by MRI & doc. Has nothing to do with vaccine.

2.11.2021 – Sore throat, congestion, fever, chills... doc says its bronchitis

Total lung capacity decreased, Nasal pruritus and Joint stiffness

3.31.2021 – Seem to have a lot of seasonal allergy type issues - runny/itchy nose, itchy eyes. Use Azelestine and sudogest.

4.4.2021 – Late last evening I suddenly got very overheated, and it lasted for about an hour. I was fine this morning, and have been ok all day.

4.5.2021 – Irritability,

4.19.2021 – Severe congestion, but believe that may be seasonal allergies even though I used my nasal spray and took Claritin this morning.

4.21.2021 – No other symptoms. These are much milder than yesterday.

4.22.2021 – Hot flash that went on for about an hour very early this morning. Once I cooled back down, I have been perfectly fine. I haven't had hot flashes for about a year!

5.17.2021 – Mild shortness of breath. Possibly allergy and COPD related, but worse the last 3 days. Stiffness in lower back and hip joints. I have been more active so this may just be a result of that (I have degenerative arthritis in my lower back).

10.18.2021 – Low grade fever - 24 hours, accompanied by diarrhea and vomiting approximately 2 weeks ago. Low level headache ever since.

2.18.2022 – Diminished lung capacity, headaches post Covid.

7.18.2022 – I have little energy, and have a hard time breathing. Not sure if it the heat, asthma, COPD or from the vaccine. This has been ongoing for a few weeks. I also sweat all the time.

12.5.2022 – Struggle breathing at times Lightheadedness Constant sinus issues Mid back pain Low stamina

Fluid retention, Systemic lupus erythematosus and Weight increased

3.13.2021 – Sinus congestion

3.16.2021 – I have systemic Lupus joint pain my joint pain may be associated with that.

4.9.2021 – Extreme Fatigue and weight gain due to water retention along with occasional headaches

4.15.2021 – Chest pain shortness of breath. Difficulty swallowing. Extreme fatigue, slight headache. When I swallow liquids its hard to digest feels like pebbles are rolling down my chest very painful.

6.12.2021 – Bouts of on and off extreme Vertigo episodes with headaches . Numbness and tingling in my toes while sleeping at night. Increased joint and muscle pain in my knees sometimes its debilitating. Primary Care Physician