Their Stories

Parkinsonian rest tremor, Foot deformity and Joint instability

3.17.2021 – slight tenderness at site of injection

3.30.2021 – GI distress, bloating, diarrhea, excess gas and churning; fatigue

11.17.2021 – Muscle and joint weakness and aching

4.13.2022 – Diarrhea, fatigue

10.3.2022 – Increased tremor, fatigue, weakness, chills, mental fog

10.24.2022 – Fatigue, polyneuralgia, brain fog, increased body-wide tremor, chilled to cold hands unto body-wide; intermittent, bilateral legs and feet mm. stabbing, cramping; toe clawing, arch and instep stiffness unto instability; repetitive finger movements

Abdominal pain lower, Heart rate irregular and Hot flush

2.13.2021 – Can you have a Tetanus shot 4 days after the Covid vaccine

3.3.2021 – I have had stomach pains in my lower abdomen . Sticking pains. And muscle pain . I went to the doctors office

3.12.2021 – Rapid heart rate

3.14.2021 – Rapid heartbeat

6.9.2021 – My hot flashes had stopped for over a year . Now they have started again full force. Is that something that other women are reporting ?

9.6.2022 – Heart palpitations sometimes and pains in my head. Office visit

Guillain-Barre syndrome, Paresthesia and Fatigue

1.14.2021 – Felt that pulse rate about 1 1/2 hours after vaccination. Feel like its stable now.

2.4.2021 – Not sure if I have just been tired for other reasons, but also my nerves which, were impacted by Guillian Barre like symptoms over a year ago, have been acting up. My neurologist had cleared me for taking vaccines. Next inoculation next week.

2.13.2021 – I have polyneuropathy caused by a reaction to a severe intestinal infection in 2019. This has been resolving according to my neurologist. In the 5 or so weeks since my first and now second vaccination, I feel that I have relapsed with my paresthesia sensations. I dont know if the vaccine could have contributed to this, or if its coincidental as I had never fully recovered from this disorder.

2.11.2022 – I have paresthesias as a result of an infection @ two years ago. Diagnosed as Guillian Barre like, but not confirmed. Think that they have been more noticeable since vaccinations.

Liver disorder, Coronary arterial stent insertion and Renal disorder

2.5.2021 – Chills all night last night, gone this morning.

2.6.2021 – Slightly feverish in the night gone by morning.

2.7.2021 – Fever last night. My normal is 97.6. Last night was 98.8.

2.11.2021 – Yesterday and today Ive been a little unsteady on my feet. Not dizzy or lightheaded just a bit out of kilter. Not sure if I can attribute it to the vaccine injection.

5.6.2021 – I recently had a heart stent. Not Covid related. Ive know for several years that it was coming. I also have fatty liver with fibrosis. Again, Ive known for years about the liver. Seems to be a genetic component. Both parents and 2 sibs have sim

8.5.2021 – Some shortness of breath. Also have some liver and kidney issues and in April got 2 heart stents. Blood work with primary doctor

2.6.2022 – I have had new symptoms from pre-existing issues before Covid. 2 heart stents, NAFLD and kidney issues. Liver trials

Fluid retention, Weight increased and Gait disturbance

3.21.2021 – Headache

4.3.2021 – Head ache serious head ache

4.21.2021 – Rash on my buttox and gained 5 lbs since shot

4.23.2021 – Gained 8 lbs, bad water retention

4.24.2021 – Water retention and weight gain

5.1.2021 – Muscle cramps and extremely hard to walk or lift anything my arms cramp so bad! Wish i never got the vaccine and wont recomend it to anyone! NOT worth 6 months to do all over again and nobody cares how we are!

5.15.2021 – Muscle cramps hard to walk at times

5.24.2021 – Exhausted constantly and muscle cramps still

10.16.2021 – Difficulties breathing exhausted easily and cronic aches and pains

Joint stiffness, Gait disturbance and Memory impairment

3.18.2021 – Im going to be 82 April 6 so aches is ok

3.20.2021 – Tired

3.21.2021 – No energy and worried about my arm. I never had a red or swelling before. Im 82 in April?

3.22.2021 – Not too hungry, foggy brain want to just rest and do nothing

3.23.2021 – I think today Im on the mend

3.25.2021 – No felt good all day and now started to feel a little sick in my stomach.

4.8.2021 – Tired, sometimes I feel dizzy at times. And bowel problems.

9.16.2021 – Some smells like coffee smells bad to me and cannot smell things like perfume etc!

5.16.2022 – My joints are stiff and hurt ,and short term memory I feel has changed. But I don't know if it's age or having had the virus. Going to make a doctors appointment soon.

7.4.2022 – Having a hard time just plain walking! I golf only once this spring. I get very physically tired. A Physical

Bradykinesia, Feeding disorder and Alopecia

5.20.2021 – More tired than usual past few days

5.27.2021 – Feeling weak and slower in the mornings; not able to work yard with as much energy and not as strongly

10.22.2022 – Hair loss im the last year; could be my age Very uncomfortable constipation (Had to go but just couldn't, lower abdomen distended, unable to eat) two days after October vaccine used 4x17 g Miralax with good result. Bowel habits back to normal Consult with primary physician's RN

Esophageal spasm, Bruxism and Aura

2.26.2021 – A mild scratching/burning sensation at the back of my throat that began soon after the injecting (under 5 minutes) and lasted roughly 3 hours.

3.19.2021 – Nausea

3.26.2021 – My teeth hurt about 10 minutes after the second dose. 7hrs later they feel sore and are causing my jaw to clinch.

3.27.2021 – More than joint pain, all my bones ache. Starting at 2am and continuing on.

4.9.2021 – Headaches and body aches are more frequent, I've had nausea and loss of appetite half the week.

5.2.2021 – Headaches and body aches come on faster and more easily.

6.25.2021 – I've started experiencing visual aura

9.24.2021 – Chronic itching, esophogus spasms, and high spikes in heart rate.

Nerve injury and Oral pain

9.12.2021 – Nerve damage in the shoulder and neck on the side of my first vaccination. My doctor thinks it was either the injection or the vaccine itself. I thought it was a rotator cuff impingement, so I didnt report it earlier.

10.26.2021 – I continue to have sensitivity in the lower come on the right side of my mouth. This is a holdover from my first vaccination back in February. I saw my primary care doctor on August 30.

Tonsillar exudate, Food aversion and Oral disorder

12.31.2020 – Rhinorrhea (not sure if above and this = URI or related to vaccine)

1.2.2021 – Swelling and tenderness in my axilla, same side as shot (my sister got the same thing at about day 7 post-vaccine

1.3.2021 – Rash anterior axilla this am resolving now. Pain in axilla also resolving.

1.11.2021 – Felt worse day after with increased arm swelling, but since then have been fine.

1.18.2021 – Stuffy/runny nose, sore throat, body aches I intermittently.

1.21.2021 – Sore throat

1.23.2021 – Dizziness. Sore throat. (I tested negative for strep, mono and covid)

1.24.2021 – Food aversion, sorted throat, white papules on tonsils, and buccal and palatine mucosa, cough

1.25.2021 – Sore throat with petichiae and exudate (strep-negative), mild Cough and difficulty breathing.

1.26.2021 – Sore throat with exudate

2.16.2021 – New onset injection site pain and tenderness (never had any after shot #2 until now).

2.23.2021 – Arm getting more sore. Tender to touch but not swollen or red.

4.20.2021 – Intermittent pain at the injection site (still)

1.20.2022 – My left arm still hurts.

Musculoskeletal disorder, Abdominal pain lower and Disturbance in attention

5.28.2021 – Last few days I felt tired, especially in the afternoon.

11.23.2021 – Worsening of preexisting torn lateral meniscus of right knee...not related to vaccine bt to overuse

1.13.2022 – Profound fatigue and some difficulty concentrating on schoolwork due to fatigue

1.16.2022 – Slight ddiscomfort and itching in my contralateral arm (where I had my second COVID shot))

1.25.2022 – Feel tired today but not sure if related to the vaccine. Had some nausea two days ago. That has resolved.

4.12.2022 – Some knee pain, bilateral, and responding to physical therapy. Most likely arthritis. Very typical musculoskeletal SX. Do not think it is related to the vaccine at all. Doing physical therapy remotely

7.12.2022 – I tested positive for COVID June 29 with symptom onset June 28th...low grade fever, myalgias/arthralgias, sore throat, nasal congestion. On July 1 had a cough and some low level fatigue. Fine now.

Sinus operation, Dysphonia and Paranasal sinus hypersecretion

2.2.2021 – Stiff neck, but that could have been from sleep position

2.4.2021 – Stiffness across shoulders and through neck area. I doubt these are related to the vaccine.

2.5.2021 – NOTE: Symptom that I forgot to mentIon : Urine has an odd smell. It started the evening that I got the shot, and seems to have decreased slightly today. Also have coughed up a liittle phlegm yesterday and today. Have had sinus drainage and some hoarseness x2days. In.creased joint pain probably due to cold front. Possible that diarrhea is due to something I ate.

2.6.2021 – These are usual aches and pains associated with degenerative disc disease and arthritis. Previously reported diarrhea has resolved. Sinus infection seems better. Phlegm is only in the morning.

2.7.2021 – Symptoms checked above are normal for me.

2.8.2021 – Fatigue, muscle aches and joint pain are normal for me. Previously reported sinus infection/ chest mucous has resolved, as has foul order of urine.

2.9.2021 – These symptoms are normal for me: joint pain; muscle aches; and fatigue.

3.3.2021 – New joint pain in neck. Arm is sore at shot site; this nurse gave me a hard jab; first injection did not hurt at all. Had muscle spasms while waiting in line, back and shoulder area- that was BEFORE the shot.

3.4.2021 – I usually have most of these symptoms, except they were markedly worse. New symptoms: headache and the abdominal pain was new. Abdominal pain was on right side, upper area under the ribs; possibly liver. Also had one episode of sweating..

3.5.2021 – 1) Shortness of breath upon exertion 2) One instance of sudden sweating.

3.8.2021 – The joint & muscle pain and fatigue seem to be at normal levels. However, I have done nothing today except read and be online, so I cannot really tell if I will habe SOB or sweating upon exertion.

3.9.2021 – SOB

3.24.2021 – Fatigue has been getting worse. NEW: low grade fever. But maybe my body is fighting something else.

4.7.2021 – Extreme fatigue.

4.14.2021 – Extreme fatigue (has worsened). Occazional temperature spikes. Nasal congestion is new.

Grip strength decreased, Trismus and Urinary incontinence

4.7.2021 – Headache day after/ tingling sensation left side of neck radiating down into left shoulder since day 3

4.21.2021 – Nasal stuffiness

4.22.2021 – Feel like head cold

4.23.2021 – Head cold like symptoms subsided

4.26.2021 – No energy

5.12.2021 – This was a symptom that started 3 days 1st injection and is still happening. Tingling starting in neck and radiating down into left shoulder and scapula into front and occasionally radiating down left arm into fingers Did not report after 1st checkin

5.19.2021 – Received 2nd shingles shot Sunday All flu like symptoms occurred (Shingrix)

5.26.2021 – Body aches and tired all the time

7.21.2021 – Left upper neck and scapula still tinglingRight jaw locking and hurts to chewLower back pain from lifting something too heavy and tearing/ spraining of lower back musclesWeaker grip with hands Physical Therapy for neck and scapula tingling

10.20.2021 – Muscles weak strength weak. more aches and pains in joints. Urinary incontinence. Left shoulder pain Primary care, orthopedic, neurological

4.21.2022 – Covid in January this year Seasonal allergies that never had before Increased joint pain More fatigue

Terminal insomnia, Oxygen saturation decreased and Tremor

2.19.2021 – Awake since 3am.

9.20.2021 – Headaches seem worse. Especially in late afternoon.

9.27.2021 – After having a flu shot I had a bad reaction about nine hours later. Chills , chest pain and abdominal pain. So bad I almost called an ambulance. The only thing that stopped me was I didnt want to leave my dog alone. I have never had a reaction

2.16.2022 – Shaking chills , low o2 , increased pulse, tired, unable to sleep, no appetite, night sweats

Angiedema, Swelling face and Swelling

12.10.2022 – For one week so far I have experienced angioedema in my cheeks, lips, & throat. Also terrible stomach pains. My allergist said this is likely a late reaction to the COVID booster vaccine. I am taking prednisone to keep the swelling & ache at bay.

12.16.2022 – The angioedema from last week continued, but improved. Now, I have much less face swelling but battled hives for a few days. Today is the first day that seems semi-normal in terms of not having hives or much swelling.

Polymenorrhea, Abdominal discomfort and Nausea

1.25.2021 – I had to use my inhaler last night because I was coughing

2.7.2021 – I had nausea one day last week and felt dizzy And I had chills al Over my body for a couple of hours . My stomach felt very sick and the next day I felt better.

3.21.2021 – I been having severe headaches and I had to go to the ER .

5.30.2021 – My period stopped after my second vaccine. I have really bad headaches and then it went away and sometimes she trying to comeback. But I dont know what happened with my menstrual cycle.

3.4.2022 – My thyroid levels are all bad, I'm changing the dose levels to regulate

Aptyalism, Nervous system disorder and Pulmonary pain

5.24.2021 – No saliva, feet and hands swollen, big fluid behind knee. Shooting pain from injection site to L forearm. Short of breath. Got oxygen. Legs severely in pain five days later. Still short of. Reach but better.

5.26.2021 – pains from my hips to inside Knees to ankle. High BP, massive sharp pain in both legs Inside of knees

6.9.2021 – Severe adverse allergic reaction. NAusea, headache, severe nerve pain in legs, hips, knees, low back. Couldnt walk for 20 days. Dr wouldnt give pain meds for leg pain and cramping. Didnt believe me. Said to find new doctor. Went to ER for diagnosi

6.16.2021 – I have severe stabbing nerve pain in both legs from hips to knees. The knuckle joints on both my hands keep swelling up. My low back radiates pain. Since my first Pfizer Vaccine 6/19/21 Ive been ill. I lost my doctor over this. He called me crazy. I test Neg 4 Covid-19 but have all the symptoms plus nerve pain

8.18.2021 – My lungs are still compromised. I cannot get second Phizer vaccine. I was ill with nerve issues and Covid symptoms 6 weeks. Lungs are hurt. My doctor wont let me come back due to Phizer symptoms. I have pictures & videos of nerve attacks. He said its drama. With him 5 years.

Pulmonary pain, Hypoesthesia oral and Cold sweat

3.8.2021 – About 2 hours after the shot i felt numbness in my lips for a few minutes. But it passed.

3.11.2021 – Feeling flushed like a really short hot flash. No fever.

3.12.2021 – Night time foot and ankle pain (all nights since vaccine, thought must be unrelated, but no other known cause

3.15.2021 – Cold sweats (unsure if related)

4.3.2021 – Neck stiffness

4.8.2021 – Insomnia

4.30.2021 – Leg swelling. Not likely related.

5.7.2021 – This is not really new or worsening. But since the vaccine i have noticed mild flashes of feeling flushed several times per week. Similar but way less significant than menopause related hot flashes. Reporting just in case this is a trend.

4.22.2022 – Period of unexplained sweatiness.

9.30.2022 – Hair loss, do not think it is related.

10.21.2022 – Cough, fever, congestion, fatigue, bronchial pain with cough

Serum ferritin decreased, Petechiae and Autoimmune disorder

4.13.2021 – easy bruising all over body; appearance of petechiae on legs (around 15-20 each leg) ; bruising began 1 wk ago; noticed petechiae for the first time today

7.23.2021 – A moderate flare-up of a chronic autoimmune issue I have that tends to flare during stress, illness, or sometimes vaccinations

10.22.2021 – Severe ferritin deficiency, autoimmune symptoms, positive ANA blood test

4.24.2022 – Flare of previously latent late-stage Lyme that had camebeen dormant until those symptoms back (joint/bone pain, fatigue, brain fog). Not sure whether to attribute it to Long Covid infection or vaccine (around same time). Tooth/jaw pain also.

Concussion, Telemedicine and Anemia

3.16.2021 – Severe anemia but not from vaccine. Just weakened by the comorbidity.

3.23.2021 – Fatigue & lethargy

4.8.2021 – Itchiness Telehealth physical therapy

4.10.2021 – Telehealth physical therapy & others

4.21.2021 – Worsening headache. Very extreme. Hurts all the time, even when Im still on slightly moving around. Have only had this type of headache since the vaccination doses. Telehealth physical therapy & outpatient visits

4.28.2021 – Headaches./migraines

5.9.2021 – Migraines, sudden unexpected falls, & concussions. Plus mild yet returned itching & pain @ injection site.

5.14.2021 – Falling injuries. Very extreme migraines.

4.9.2022 – Flu or flu-like illness

Neuralgia, Tremor and Influenza

8.31.2021 – Felt flu symptoms day after shot then felt fine for 3 days. Now I get headaches and feel really tired every day since

9.7.2021 – Still having headaches every day in the early afternoon. No aching anymore though

9.16.2021 – Tremors in right fingers

9.21.2021 – Nerve sensitivity. Everything feels much more painful than normal.

10.7.2021 – I get a headache pretty much every day between 2-5pm. All other symptoms have resolved.

10.12.2021 – Headaches typically daily in afternoon

Neck pain, Asthenia and Sneezing

2.4.2021 – Shoulder joint pain at injected arm.

2.13.2021 – Fatigue, headache, weakness, dizziness, neck/shoulder pain. I had Covid in June 2020. These symptoms have repeatedly appeared every few weeks for 1-3 days since June. This time symptoms have been worse and lasted longer.

2.21.2021 – Possible rash near armpits and abdomen. Looks and feels more like insect bites, though.

2.23.2021 – My pains, fatigue may be long Covid. I was positive in June 2020.

11.17.2022 – Fever, headache, sniffles, sneezing, stuffiness, fatigue, weakness, body aches, dizziness Curbside medication pickup

Immunization, Dysphonia and Nasal congestion

1.19.2021 – I had intermittent arm soreness at the injection site on Dec. 30 and Dec. 31

1.23.2021 – Just to note that I had these symptoms one day after my second dose (vaccine #2 on Jan 20, symptoms on Jan 21)

1.20.2022 – More frequent diarrhea. I am not sure whether it could be related to the vaccine but it did start shortly after I received my booster in mid to late October 2021. Going to have a colonoscopy on Jan. 25 GI consult and upcoming colonoscopy

11.9.2022 – Sore throat, nasal congestion, headache, hoarseness

Skin reaction, Facial pain and Throat tightness

4.1.2021 – The muscle aches is focused to the injection site

4.2.2021 – The pain is limited to the injection site

4.14.2021 – I had lots of pain around the injection site since my last check-in. It was red hot and swollen. Tylenol helped ease the pain. The pain lasted for about a week. There was a delayed reaction.

4.21.2021 – Headach, nasal congestion, fever, muscle aches, facial pain, difficulty sleeping, whole body fatigue, sore teeth, sore throat, cough

4.28.2021 – Light headiness, shortness of breath

4.30.2021 – Tightness in chest

6.11.2021 – Fever, sore throat, cough, muscle/body aches, headache, tightness in throat, and difficulty breathing

10.30.2021 – Sore throat, cough, body aches, upset stomach, fatigue, headache.

Swollen tongue, Throat tightness and Lip swelling

4.3.2021 – After 25 minutes of vaccination, I had an allergic reaction. My tongue swelled, left leg numbed, ears clogged, runny nose, swollen lips. I was taking benadryl until Benadryl was not working anymore. Symptoms got worse in which I felt throat shutting went to hospital and was admitted. They treated me for the allergic reaction, with epinephrine, steroids and Benadryl, was admitted in the hospital

Cardiospasm, Arteriospasm coronary and Breast disorder

1.13.2021 – Had dirraha n stomach pains

1.29.2021 – My heart was like it was spamas

2.10.2021 – My heart had some spams 2 days after my 2 nd vaccine. I went to my heart doctor yesterday as I already had an appt since 12/28 I had a nuclear stress test n have not felt 100 since. They aren't sure if the vaccine had anything to do with it Cardiology doctor

2.17.2021 – I have had 2 different situations with heart spams that I have never had until my 2 nd vaccine .two days after and last Friday. I contacted my heart doctor as I am high risk n diabetic

2.24.2021 – Heart has had spams. Woke up with a headache that lasted a while after I took medicine. I had open heart surgery 43 years ago n I never had any problems til I took the second vaccine. I am also diabetic n take Ozempic. It's a funny feeling

11.12.2021 – My chest hurts

4.22.2022 – My monogram had some issues n i had to have another one .There was something on my right breast. Cud the covid vaccine cause this. Also happened to my daughhter Appt with my doctors

5.18.2022 – Just got shot at 4pm tdy

6.22.2022 – Sore throat coughing. Covid

6.29.2022 – I have had 4 vacinne n had covid last week

8.17.2022 – Headaches sick i had covid on 6/21 n still have a cough. I am high risk being diabetic n i had open heart surgery, HBP. IBS. I had my second booster may 18. I have not felt like myself since Covid n Paxlovid. Dr appt with cardiologist

Erythromelalgia and Respiratory tract congestion

2.8.2021 – Congestion

3.24.2022 – I developed Erythromelalgia from the Pfizer booster shot. Now I may have to declare disability because of this adverse event! Taking medication but it's not working.

6.23.2022 – Developed Erythromelalgia 5 days after 1st booster shot. Pfizer on December 23, 2022. Constantly in pain.

12.25.2022 – Itching, stinging and burning no medicine takes away the pain. Ive been in pain for a year from taking the first booster. Cannot get hot, cant workout. My life is no longer my own.

Heat stroke, Metamorphopsia and Confusional state

3.26.2021 – HA the worst.

3.29.2021 – Almost dizzy. Proprioception seems off.

4.20.2021 – Fatigue & back pain-general muscle pain & stiffness.

4.27.2021 – This is the first day Ive felt nearly normal. 2nd vaccine gave me more serious symptoms.

5.13.2021 – Muscle, joint pain seems pretty bad again. Noticing it mostly in neck, low back, hips, wrists & ankles.

6.3.2021 – Extreme fatigue and joint pain & weakness.

7.22.2021 – Ive had 2 serious bouts of heat stroke, something Ive never experienced before. Symptoms included dizziness, nausea, weakness, visual difficulty & confusion.

10.21.2021 – Heat stroke symptoms like visual distortion, weakness, flushed. Also much joint pain.

Gastrointestinal tract irritation, Frequent bowel movements and Memory impairment

1.6.2021 – Slightly warmer than usual. My headache is really bad.

1.8.2021 – Appetite decrease two days

1.16.2021 – Memory seems to be off. Very short memory. Yeah it has made it harder to work because my memory is limited. Anxious easily.

1.25.2021 – Breathing is impaired everyday Fatigue everyday dont feel good First day stomach and increased irritating to GI

1.27.2021 – Increase bms

2.6.2021 – Headaches continue, anxiety seems to easily increase. Foggy brain, I cant remember some words. Chest hurts with increased activity and my breathing is increasingly difficult when working out. This is the same workout I have been doing before the v

2.20.2021 – Headaches on and off since my first shot. Effect my my sleep and increase with stress. Progressively worsened with second shot.

Dehydration and Rash

3.16.2021 – I do have a small rash on the inside of the opposite arm where I had the injection. I don't think it's related, but will keep an eye on it.

4.1.2021 – What is odd to me is that after the 1st vaccine, I got a rash on the inside of my left arm at the elbow. After getting the 2nd vaccine yesterday, the rash is back in the same area. Just seems weird.

5.12.2021 – Undetermined cause of weakness, low blood pressure and dehydration yesterday that required a call to 911 and admission to ER. However, I don't believe it's in any related to the covid vaccines I got in March.