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Their Stories

What v-safe registrants wrote to the CDC after their Pfizer or Moderna shots, in their own words. Each card is one person, with all of their free text. This page shows only the longer stories: the 116,000 people who wrote at least 400 characters in all. The text is as the CDC released it, except that email addresses and phone numbers are hidden. You get a random set of these people on every visit.

Shuffle

Mental impairment, Loss of consciousness and Gastroesophageal reflux disease

263-20046-71188

– Difficulty breathing since 1st dose vaccine, extreme fatigue, generalized feeling of unwellness

– Here are my symptoms: pain at injection site/followed by simultaneous S.O.B. and EXTREME FATIGUE, with intermittent headache, RUQ pain and nausea since 4.24 - 1 day after 1st injection. I feel terrible.

– I continue to feel unwell. I have headache, frequent indigestion, intermittent nausea and RUQ constant pain. I saw PCP on 5.4.21. I was not ill prior to 1st vaccine dose

– Approximately 20 minutes after receiving 2nd vaccine - I got PROFOUNDLY nauseated and felt like I was going to pass out. Initially I got very flushed then clammy and pale - I got HYPERTENSIVE when normally I am normotensive with a BP 120/80. I continued to feel poorly - I was taken to ER where my S/S continued and my BP went as high as 135/110 - TOTALLY OUT OF NORMAL FOR ME. I was finally feeling safe enough to be dc'd. I don't know what happened - all I know is this is what happened.

– Feel mentally blunted

– Constant GERD S/S with intermittent profound nauea

– Feel so exhausted but cant sleep. I am so tired i could cry.

– Constant headache with elevated BP (HTN) - put on BP MEDS since 5.26.21. My BP has always been 110's/70's. I have NEVER had high BP and 20 minutes after 2nd vaccine - I was profoundly hypertensive - I was sent to the ER. Staff thought reaction.

– I feel profoundly fatigue with a headache that does not respond to tylenol. I do not eat/drink caffeine. I also had HTN and NEVER was hypertensive before that now requires me to monitor BP and take bp meds. Routine visits with now Internal Med MD because I got so sick and needed a different/advanced level of care

– Brain Fog continuesProfound Fatigue continuesHeadache continuesLightheadedness/Dizziness continuesGeneralized feeling of unwellness continues Primary Internal Med MD

– Constant headache - I rarely got headaches before.Profound and constant fatigue that NEVER goes away.Migrating body aches - I have no idea why.Generalized feeling of unwellness'. New Internal Med MD with multi visits/communications.

– Still continue to have generalized feeling of unwellness.Intermittent headaches.Intermittent nausea.Consistent fatigue.

Tic, Limb mass and Dysmenorrhea

263-24269-09016

– Gassiness

– May not be related, but my period started early the day of the vaccine and my period symptoms are significantly worse than usual.

– Im currently on two forms of birth control (the IUD and oral birth control pills) and even though I am taking the regular birth control pills and NOT the sugar pills right now, I still got my period. My period is also a week early and I had some pretty intense cramping around my pelvic region. This happened with my first dose as well.

– Sudden lump in my left leg, getting an ultrasound to look at it this next Wednesday.

– Lump in my leg that wasnt due to accident or injury, severe lower back pain

– Increasing back pain (possibly sciatica), leg pain in one leg, increasing amount and intensity of headaches

– Motor tics

– Cough, congestion, shortness of breath (I have a cold, however, so this likely isn't due to the booster)

– Shortness of breath

Intestinal resection, Appendicectomy and Post-acute COVID-19 syndrome

263-25539-02366

– Shortness of breath

– Mild shortness of breath

– Had a moderate allergic reaction to a food I have never been allergic to last night. It was really strange. I recognized it because I have been anaphylactic to dairy since childhood. Reaction was to onion. Ate onions again today and I was fine.

– A short temper from not feeling well.

– mild heartburn, extremely lucid dreams

– Difficulty breathing

– Mild difficulty breathing

– Mild Constipation, mild feeling out of breath, and mild depression.

– Moderate Heartburn

– Long Covid symptoms have improved significantly and gastritis that Ive had for past six months has improved. Overall, my overall health and well being has improved significantly.

– Had an emergency appendectomy with removal of 4 inches of my bowel and a bowel resection. Appendix was chronically inflamed for months before its removal according to the surgeon has been. I am currently recovering.

– Runny nose and congestion.

– Improvement in long Covid symptoms.

– Lost smell for a couple of weeks. Also caught the flu.

– Constipation

– Constipation and food allergies.

Upper-airway cough syndrome, Tenderness and Throat irritation

264-13824-25335

– Scratchy throat, post nasal drainage

– Throat congestion

– Nasal/throat congestion

– Congestion

– Nausea, headache

– Headache

– Return of headache and fatigue

– Chronic cough, fatigue

– Intermittent bouts with headache, nausea and muscle soreness.

– Discomfort to axilla

– Discomfort to axilla on side of shot

– Discomfort axilla, sore throat

– Tenderness axilla area

– Soreness in axilla

– Tenderness to axilla

– Muscle soreness, joint pain, fatigue, headache

– Continue with bouts of extreme fatigue, joint and muscle aches

– Fatigue, joint pain

– Headache, scratchy sore throat, chills , muscle and joint soreness and fatigue

– Episodes of Headache, fatigue, diarrhea, muscle aches and chills.

– Fever muscles aches, fatigue, sore throat

Hypercalcemia, Infected bite and Hyperparathyroidism

264-14998-85148

– Small muscle twitches every where.

– Small muscle twitching all over.

– Small muscle twitching all over body.

– Small muscle twitching all over my body.

– Body twitching

– Itchiness. Face, head, neck, and spine. Seen by primary doctor.

– Headaches/migraines. Doctor appointment

– Migraines Primary care office visit

– Migraines and headaches In-office visit

– Tick bite infection, still dealing with headaches/migraines. In-person doctor appointments.

– Hyper parathyroidism and hypercalcemia. Testing.

– Migraines, sore throat, sinus issues In person

– Eye migraines, very bad nausea. Sweating. Itchiness.

– Eye migraine daily In person

Change of bowel habit, Colitis and Blister

264-15655-79193

– 3/30 swelling & pain in middle toes on R foot. Pain ~12 hours; mild-moderate pain thru Thurs 4/1. 3/31 stiffness & mild pain in fingers lasting ~12 hrs. Blisters on toes 4/1. As of 4/2, fingers ok, mild swelling/redness/blisters still on toes.

– Starting in June I have had abdominal pain, bloating, and changes in bowel movements. I have been sent to ER by PCP twice. CT scans showed colon inflammation. Antibiotics did not resolve issue. Late October colonoscopy will check for suspected IBD.

Bedridden, Noninfective gingivitis and Gingival swelling

264-78024-85309

– Large red welt at injection site almost a week ago. Accompanied with intense itching and burning. Broke out in small red hives on upper body, face and upper extremities. Symptoms persisted for 3 days and now have begun to improve.

– Glands in both sides of neck and gland in left armpit, where injection was given, very swollen and painful to touch.

– The headache is a migraine. I have been bedridden most of the day. Intolerance to light and sound accompanied with pain in neck, jaw and side of head. Was bad at start of the day, but is slowly improving.

– Very light headache.

– 12 days post vaccine dose 2 I had fever, chills, fatigue, joint pain. Today, fever is gone, but other flu-like symptoms remain accompanied with minor chest pain.

– Facial psoriasis and additional rashes on body.

– Overall not feeling well. Barely have an appetite, nauseous when forcing food. Every joint in my body hurts. Hurts to walk, to sit, to lie down. Battling constant headaches. Gums are incredibly inflamed and swollen. Eyeballs ache, etc.

– Dizziness, lightheaded

– Left side chest pain, pain behind left shoulder blade, shortness of breath, pain goes away if I lean forward or lay down.

– Pain and pressure in left side of chest with pain in left shoulder blade. Pain and pressure improves with Naproxen. Very winded and hard time catching breath when experiencing the pain and pressure in chest. Breathing improves with Naproxen for pain.

– Pressure is back in center and left side of chest. Feeling a little winded. Symptoms are mild compared to what they were a few days ago.

Head discomfort, Rash pruritic and Hypoesthesia

265-16401-70659

– Numbness in the face

– No

– Pressure/heaviness in the left side of my face

– Sore throat, pressure/numbness on the left side of the face

– The skin rash increased and was very itchy, I couldnt sleep. I went to a doctor and got a steroid shot that helped for a couple of days then the rash is back. I am taking multiple antihistamines

– The rash came back and I am again in antihistamine and allergy medicine. I was given a second steroid shot

– The rash is very painful and extremely persistent. Antihistamine did it work. I am on singular and prednisone 40 mg per day. And that still is not 100% effective. The doctors will put me on xolaire next week.

Injection site bruising, Myalgia and Arthralgia

265-17840-71176

– Bruising at injection site- 1.5 inch diameter normal brown yellow shade

– Bruising at injection site

– I received the second shot on Jan 18 at 5:00pm, within 5 hours I had developed some general aches in my back and an elevated temp of 99.5F. The next day I had moderate aches in muscles and joints from shoulders to knees and slept most of the day, Tuesday Jan 19. On Wednesday I felt well enough to work from home but still about 3/10 for malaise. Outside of 48 hours post 2nd shot, no symptoms.

Muscle injury, Axillary mass and Edema peripheral

266-18094-25919

– Under arm swelling for 8 days

– Large soft lump under right armpit - same arm as site of shot. It came a few days after second shot snd us just now starting to dissipate.

– Severe headache for an entire day. Never happens to me usually. No OTC helped relieve pain in top of head which lasted all day snd into the evening.

– Not worse but the swelling under arm still there but fading. My doctor did sonargram and saw multiple lymph nodes with minor swelling.

– Headaches that are pretty intense occasionally.

– Unusual muscle injury over minor movements.

– I have Covid and have also had both Moderna vaccines. Intense symptoms.

Feeling hot, Back pain and Chills

266-25570-64276

– Ear canals felt extremely warm last night. All symptoms started 4 hours after the vaccine. Currently chills and back and body ache and intermittent spasmodic cough most prominent at 23 hour mark

– 6 weeks ago i was ill with flu like illness for about 10 days. My covid swab for pcr came back negative. On the morning of my first Pfizer vaccine just fir the heck if it i had my serum Covid antibody tested. I took the first dose of the vaccine that evening. Next day got the ab result back: greater than 100. So i had the Corona virus infection about 6 weeks prior to taking the first shot of the corona vaccine. My question is should i take the second shot on schedule or wait longer. U can reach me at (B)(6)MD

– Mild headache

Angle closure glaucoma, High frequency ablation and Cataract operation

266-57422-25320

– Muscle or body aches = prior to vaccine

– I have MS and neglected to mention the night after the shot that I was wakened by pain at the site of my first MS exacerbation symptoms. Not serious but surprising. It recurred in the middle of the night last night. Not worrisome but unusual.

– Same minor pain at site of my initial MS exacerbationmore protracted but not severe.

– Still some pain in middle of night at site of first MS symptoms

– I suspect this has nothing to do with the vaccine, but I woke up two days ago with a sharp pain in the outside of my left thigh that was severe enough to make me scream. No injury or other evident proximate cause. Possibly < my MS ?!?

– 2 days after my booster shot, I experienced what was described to me as benign paroxysmal positional vertigo for the first and only time in my life3 times in one day steering at 6 a.m. (N.B."care" below= Zoom call with doctor but no treatment.

– Lower back pain has been worsening; sore throat this a.m., which I'm attributing to the change in the weather

– Had an ablation for lower back pain at L3/L4/L5 last Wednesday. Currently I have a drippy nose, intermittent scratchy throat and body aches. I also get short of breath which might be from the pain in my lower back exhausting me.

– No

Rosacea, Food allergy and Swelling of eyelid

267-27819-36007

– One eye is swollen for no apparent reason

– Swollen eyelid and nose on right side of face

– Stomach pain and loose stools

– My rosacea flaked up immediately

– Hives

– Arthritis in my hands is worse.

– Stuffy, runny nose

– Joint pain throughout my body.

– Facial swelling, redness possibly from insect bites. Cellulitis diagnosis.

– Hives. I get hives occasionally under normal circumstances.

– Fever, chills, stomac pain

– Fever, hives, face swelling

– Recurring hives. New food allergy-shellfish

Euphoric mood, Sputum discolored and Body temperature increased

267-33806-99900

– Head rush after injection and now some euphoria

– Euphoria feeling

– Still having euphoria feeling in my head

– Had moderate euphoria today and fatigue.

– Moderate fatigue since vaccine

– Off and on feverish. Temp of 100. Slight runny nose and a girgling behind my ears. No energy to speak of and get exhausted at the slightest exertion.

– Bad headaches

– Euphoria like a hangover feeling

– The body aches started on my left side as the left arm is where I received the shot. The pains have migrated to the right side of my body as well.

– I have a bad sore throat for a week now with extreme fatigue. I also have been spitting up brown mucus. Just feel real lousy for a week now. It started after my last check-in.

– Bad sore throat for two weeks now as well as a cough and brown mucus. No energy!

– I have Covid. Been very sick.

Hypoesthesia oral, Upper respiratory tract infection and Hypersensitivity

268-30377-69429

– Almost immediately after the shot I got a shooting, stabbing pain in my neck up to my ear on the same side as injection. Lips became numb within a half hour and are still numb but getting better. Jaw on side of injection is very numb.

– Numbness of lips and face 16 hours post injection. For 2 hours post injection yesterday rapid, pounding heart test lasted 2 hours

– Today was the first day post injection that all signs of the allergic reaction went away.

– Chronic headache 5 days duration

– After days of a headache, developed a sinus infection. Treated with OTC decongestant, expectorant, and Tylenol. 7 days duration. Almost gone now.

– Upper respiratory infection

– Sinus infection, lasted 10 days

– Shoulder pain and COVID

Sunburn, Gallbladder operation and Gallbladder disorder

268-46134-35230

– My arm is so sore that I cant lift it. Other than that I feel great. But, right after the vaccination my face looks like I had a second-degree sunburn. Very red with my eye swollen a bit. But that went away after about 45 minutes.

– My jaw and teeth hurt

– My face keeps looking really red like a sunburn.

– Fever and throwing up. Very nauseated and fatigued.

– Severe chest pain on both sides. Along with follow up with a cardiologist and also may possibly have my gallbladder removed.

– Gall bladder issues/surgery. Mild heart attack. Fatigue. Depression.

Feces discolored, Gastrointestinal pain and Syncope

268-76974-50027

– Yes, yesterday (shot day). About 20 mins after shot, I felt foggy & slightly dizzy. Then about 8 hrs later, I had severe abdominal pains, my blood sugar (I am not diabetic) bottomed out & I felt nauseous, weak, faint & had cold sweats. Then I had severe loose stools with pain, very weak. The stools were poorly formed & water. They went on for -7 mins. Color was very dark green/black. I was extremely tired. Sitting up in chair with blankets trying to get warm. No fever. During night, arm pain woke me up many times as did continual abdominal pain.

– Abdominal pain is sporadic & doesn't last long.

– Knees Right Shoulder

– Not clear headed.

– Continuing very very loose stools that occur - even waking me up. Very tired today.

Mental status changes, Mental disorder and Blood glucose increased

269-12633-98833

– Redness gone

– Spiked blood sugar

– Still chest discomfort when breathing or swallowing. Maybe from vomiting?

– Full on cold symptoms, sore throat.

– New. I list smell and taste with covid in Dec 20. Came back, but now I have other smell/taste issues. Will search for anyone collecting data on this. A bad smell/ taste permeates everything. Started 2 weeks+ ago. Didn't see pattern until it worsened.

– Food tastes bad. Everything smells bad. Mental health much worse.

– Had partly recovered smell. Now taste/smell issues eclipse everything. Hard to eat. Heard to be awake. Mental health suffering.

Panic reaction, Panic attack and Confusional state

269-12825-15093

– Brain Fog, anxiety and panic attack.

– Brain fog, dizziness/lightheaded ness, confusion and panic attacks

– Brain fog still had some panic

– Still have dizziness, brain fog and panic attacks

– Dizziness, lightheaded and panicky

– Dizziness, lightheaded, fatigue, headache, anxiety/panic attacks In office doctor appointments

– Dizziness, panic, confusion, nausea, headache and head pressure Primary care doctor visit and phone calls

Thyroiditis acute, Thyroid pain and Goitre

269-20670-41024

– Was getting these texts then system failed afte 1/10/21

– Hot flashes

– Im a physician. I may have acute thyroiditis with pain and swelling of thyroid. As per endocrinologist just had labs today. Also have a slight dry cough if inhale deeply. I have maintained CDC guidelines re prevention of COVID. Labs done TSH ESR CRP Free T 3, T4,

– May have acute thyroiditis, awaiting labs on Advil

– Thyroid swelled

– Recurrent ovarian cancer

– Persistent tinnitus related temporally to last Moderna vaccination. Iam a physician and know that both an actual infection with Covid or a vaccine to Covid has been reported to cause tinnitus. We know that the virus can effect the brain.

Immune system disorder, Acupuncture and Eye pruritus

269-70231-85951

– Both symptoms have gone away as the day has gone on

– I think they are related to seasonal allergies. Slight nose running and sneezing, itchy eyes. Also feeling generally tired.

– Neck and shoulder pain Acupuncture

– Weepy sore on back of neck that also itches a lot. Started Sunday 4/18, really uncomfortable Mon/Tues . Brief pain into head and down neck. Short bouts of fatigue. Random 2 hives on left thigh. Diagnosed with shingles yesterday 4/22. My primary physician's office

– Felt like my immune system was always agitated; working against something like a fever blister, for instance, but never resolving. Acupuncturist and herbalist

– Runny nose, fatigue

Contraception, Vaginal hemorrhage and Dysmenorrhea

26A-11542-98492

– I am currently using nexplanon birth control. I do not menstruate while on the birth control. I rarely have bleeding (light menstruation) while on it. I began light bleeding 3-8 hours after my first vaccine. And it has continued light bleeding (menstruation) today accompanied by light cramping.

– This is day 7 of vaginal bleeding. This is very rare for me. I am on Nexplanon birth control and rarely bleed at all and if I do, it is spotting for 1 day.

– I am still bleeding (menstruating). As previously reported, I am on Nexplanon birth control and having a period is extremely rare for me. If I do bleed, it is very light for 1 day.

– I am still bleeding/menstruating which is very rare. I am on Nexplanon and do not get a period.

– I have some soreness/stiffness in my shoulder/neck of the side where I got the shot. Im not sure if this is from my workout or the shot.

– I started my period. This is very rare with the Nexplanon birth control Im on. I never get my period.

– I have headaches. I have visited my doctor to discuss my drastic changes in my period/menstruation. I feel very irritable, which is abnormal for me. Visited my doctor at her office

– Cold symptoms

– Began menstruating on and off for the past 6 months, which is abnormal for me as I am on Nexplanon birth control.

– As mentioned in all my check ins, I experience sporadic bleeding/menstruating in between cycles which is very rare for me as I've been on Nexplanon birth control for 8 years. I experienced little to no bleeding prior to vaccine.

Blood pressure decreased, Hypotension and Tremor

26A-15611-29724

– I felt very nauseated a couple days ago, and slightly fatigued yesterday, but better now.

– I randomly had an elevated temperature (ranging from 99-102, but not consistent) and no other symptoms, I felt completely normal otherwise.

– Random inconsistent pains in abdomen and chest.Muscle soreness (more than usual) in shoulders, back, and neck.Sometimes headaches.Sometimes slight dizziness.

– Palpitations

– Low blood pressure at least one day. Shakiness/weakness, feeling faint, and feeling off.

– Continued lower than normal blood pressure at times. Abdominal pain.

Autonomic nervous system imbalance, Irritability and Menstrual disorder

26A-20611-84427

– Slight congestion

– Mild brain fog

– Heavy menstrual cycle with daily nausea. Poor heart rate variability the last two mornings when checked.

– In early May at the end of my menstruated cycle, I experienced a fever which would start around 4 pm (max 99.8F). Id have night sweats. This lasted for ~5 days. I would wake up without a fever (checked w/thermometer). No symptoms since. I sent a note to my PCP. If it lasted another day, I was planning to go in to see her.

– Poor autonomic nervous system recharge over night per my Polar Ignite watch was terrible. No alcohol consumed for over 2 weeks either.

– Night sweats

– Crabbiness

– On Sunday, I woke with a headache. I had no alcohol the day prior. After vomiting, I slept. Acetominophen helped reduce the headache. After a good nights rest, I felt much better Monday.

– Covid infection first week of August

Insomnia, Pyrexia and Cough

26A-52269-11208

– This started 5 pm yesterday by 8pm is was in some real pain . About 3 am it stopped . Im still a little fatigued from not getting much sleep because of the pain

– When I was in pain from the first shoot I have taken an ED pill Im guessing thats why I had a bad reaction to the first shot . I made sure I did take any medication this time and I feel great !

– Cough but could just be my allergies

– Really sick hospitalization for 3 day was sick for two weeks.

– I was hospitalized for three days with symptoms of Covid temperature of 102 for more then a week . All test came back negative. Doctors never figured out why I was sick

Hypokinesia, Impaired healing and Hypoacusis

26A-94581-35807

– Flushed

– Constipation, gas

– Cant hear, constipation, gassy

– Hard of hearing, zap like feeling in injection area radiating down

– Healing issues and a radiating nerve like pain from injection site to elbow.. hard to lift sometimes..

– Hard to hear, injection site zapping feeling, like nerve pain that radiates down to my elbow. Hard to lift up also.

– Hard to hear and nerve like pain fron injection site to elbow

– Hearing issue

– Joint pains

– Diarrhea, chills, head ache, malaise,

Myositis, Arthritis and Back pain

26B-11183-36088

– Have had a firestorm of inflammation at joints and muscles. Comes and goes in waves. Yesterday went to primary care physician who gave an injection of steroid and nsaid. Feeling much better after two weeks of muscle/joint pain.

– Very sore shoulders, bicaps, very sore palm padsand hamstrings

– Muscle and joint pain. Completed 5 day course 10mg Prednisone. Most symptoms improved until end of course. Now have additional pain in palm pads, hamstrings, lower back in addition to continuous shoulder and bicep pain

Conjunctivitis, Sinusitis and Back pain

26B-81587-32697

– The nausea was also present before the injection and has since subsided. Its common for me.

– Bad back pain. Had it for a while but its significantly worse than normal.

– Back pain but that was present before the shot, however it has worsened.

– Little bit of pain in my back on the right in the ribs. Not worsened by breathing deep or coughing.

– Sinus infection and Conjunctivitis both of which were treated with antibiotics and both are gone.

Hyperacusis and Herpes zoster

26C-19871-73083

– My hearing is very sensitive today its like everyone is yelling

– I got the shingles

– This is the 2nd time I e got herpes zoster after I got the Covid vaccine. The first one, I got a huge spot in my chin, and the 2nd one a week later (same as first one) I got another out break. It causes great discomfort but better than getting Covid. I want to know if this is normal. It is for me and maybe should be noted. Is it because my immune system is trying to fight it off? Is it because my immune system is down because of the vaccine?

Myasthenic syndrome, Myasthenia gravis and Muscular weakness

26C-32294-57772

– New Myasthenia Gravis diagnosis

– New diagnosis of Myasthenia Gravis

– 3 hrs after Moderna booster symptoms of my Myasthenia Gravis started debilitating me. I am now taking IGIF infusions daily for 5 days at hospital. MD believes this happened due to the vaccine. To be watched with other autoimmune people

– Myasthenia Gravis exacerbation IVIG infusion

– Vaccine activated symptoms of Myasthenia Gravis Immune globulin IV infusions at hospital for 5 days

– 3 hrs after the Moderna booster my myasthenia Gravis started active symptoms which have progressed even after starting on steroid and increased doses of Mestinon my MS medication. Please notify the researchers. I am an RN On IVIG infusions daily x 5 days

– Activation 3hrs after my Moderna booster shot. I started symptoms of active myasthenia Gravis exacerbated symptoms requiring me to have AiVIF immune globulin infusions in hospital for last 5 days Today was last day. I would like to be notified by res

– Extreme muscle weakness due to activation of my Myasthenia Gravis 3 hrs after getting the Moderna booster. Symptoms so bad I have had to have IV immune globulin treatments for 5 days at hospital. I am now on steroids and very debilitated. Neurologisv Yesterday completed IVIG treatments at hospital x 5 days. No significant change in severe symptoms

– Exacerbated Myasthenia Gravis symptoms IVIG IV infusions at hospital for 5 days fail. Completed 10/ 29

– Still having muscle weakness arms and back Neurology IV person visits X 2 IVIG treatment x5 completed on 10/29 T hospital.

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