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Their Stories

What v-safe registrants wrote to the CDC after their Pfizer or Moderna shots, in their own words. Each card is one person, with all of their free text. This page shows only the longer stories: the 116,000 people who wrote at least 400 characters in all. The text is as the CDC released it, except that email addresses and phone numbers are hidden. You get a random set of these people on every visit.

Shuffle

Retinopathy, Central serous chorioretinopathy and Suicidal ideation

23R-21060-30148

– I had a lot of fatigue. But the 17th, I started to have suicidal thoughts, but was not suicidal. That progressed to waking up from a dream with an entire plan that I then had to convince my mind I did not want, as I had no reason or desire to die.

– Burning way back in my nose

– Central serous retinopathy to left eye

– My deltoid muscle has been very sore and continues to be this way, so I have referral to physical therapy. Since the booster, I have had flares of my interstitial cystitis and fibromyalgia. Dental issues and stress related retinopathy. Mental decline

Hangover, Feeding disorder and Abdominal distension

23R-32243-12441

– Minimal Abdominal discomfort

– Anorexia, general unwell feeling, lightheadedness. The symptoms are causing me to not be able to eat, once I eat I become nauseated. Unsure if vaccine related but I've been unwell for about a week. PCR test negative.

– Like run over by train, hangover

– Lightheaded A little bit

– Armpit pain. Diarrhea. Not sure if vaccine related. Just seems to not go away.

– I seem to get mild headaches that are very transient but its not something I usually get. Other than that I think Im doing well. Oh my period came 2 weeks after the vaccine every time.

– Occasionally mild headache, stomachache and bloating.

– Covid-19

Influenza, Vomiting and Rash

23S-13769-85844

– On wed I was throwing up thurs a fever felt like I had the flu but I had Covid back n dec

– My mom had a rash on her both her hands but she still has that headache

– My mom is feeling awful today

– My mom still feel aweful headache still

– Fever off and on felt like. Had the flu just like right now I feel aweful To answer ur lady ? I had Covid back n nov/ dec was n the hospital for 5 days. Just went back to work on 3-16-21 4 hrs aday Im still on 4 hrs aday left me with a want l

Bladder disorder, Urinary tract disorder and Postural orthostatic tachycardia syndrome

23T-20669-02466

– MS

– MS; Postural Orthostatic Tachycardia Syndrome

– MS and Postural Orthostatic Tachycardia Syndrome

– MS and Postural orthostatic tachycardia syndrome

– MS and postural orthostatic tachycardia syndrome

– MS and Postural Orthostatic Tachycardia Syndrome/previous Massive bilateral PE

– MS and POTS

– MS and P.O.T.S.

– Digestive issues

– Urinary and bladder issues; issues with bowels

– MS, Postural Orthostatic Tachycardia Syndrome

– MS and Postural orthostatic tachycardia syndrome- past PE

– MS, past PE and Postural Orthostatic Tachycardia Syndrome

– Flu like symptoms but negative for Covid

Fall, Contusion and Pruritus

23T-24800-07052

– Yes. This exam states that I had only the first Pfizer vaccine. Thats incorrect. I have had both inoculations.

– You dont seem to understand. I got my first covid shot on 1/27/2021 and my second on 2/18/2021. Please adjust your records.

– No serious problems

– No, over all Im good.

– Itching around my neck and shoulders

– I fell and bruised my back , hips and head but other than that I'm okay

– Itching over my limbs and trunk.

Mobility decreased, Influenza like illness and Migraine

23U-14125-69330

– Severe pain in my arm on day 2 and could not lift my arm above shldr level, also had tiredness

– Yes!! On 04/07/2121 the day after my second vaccine, I woke up with a 103.5 F degree temp, severe migraine and body aches, fatigue severe, chills like a BAD flu!!! For over a day. Temp finally came down to 100 and now Nl, but BAD rash and its spreading. Had this after my first shot too. Went to dr and reported this.

Rash vesicular, Blister and Joint stiffness

23U-25710-41953

– Symptoms came suddenly last evening with night sweats but felt fine by morning

– Rash (blisters) on hands that feel like burns with arthritis like stiffness. Dr. Prescribed dexamethasone. Symptoms are improving.

– The blisters on my hands that I mentioned the last time resolved with the dexamethasone. However, the stiff joints and sore muscles in hands have progressed to my hips and knees.

– I am only feeling fair due to a extremely stiff neck. Im sure more due to a recent fall then vaccine.

– I have just been diagnosed with shingles

Chest pain

23U-28602-45676

– Experiencing occasional/intermittent chest pain since 2nd shot. EKG today was normal. Also currently scheduling a stress test & Echocardiogram to be on the safe side. No evidence it is (or is not) vaccine related. In-house doc-patient visit today

– I am still experiencing intermittent chest pains and am scheduled an Echo next week and a stress test the second week in July (soonest available). No idea if it is vaccine related although I only started having them after my second vaccine In office visit

Blood sodium increased, Thyroid disorder and Urticaria

23U-31281-57766

– I had an issue with my sodium level being high which caused hives (in certain areas of my body), but it only lasted a day or two.

– Hives: Certain area of my body, but it'll go away a day or two

– Break out in hives (around the waist area)

– Breaking out in hives around the waist area

– Hives are still forming, but not as bad.

– Hives are still in existence but fade away.

– Flaring up hives once a week or every other day

– Sore throat

– Having headaches

Swelling of eyelid, Disorientation and Loss of personal independence in daily activities

23U-77046-06554

– Sore throat, no taste or smell

– Sore throat

– Difficulties to concentrate

– Difficulties to concentrate.

– Feeling feverish

– Shortness of breath, joint swelling, smell and taste disorder/loss

– Disorientation of smell and taste, cough Emailed my primary care physician.

– Sore throat, cough, numbness in fingers, arms, or feet.

– Sore throat, cough, dry mouth, disorientation of smell and taste.

– Cough, sore throat, extreme mouth dryness, disorientation of smell and taste.

– Increased headaches/migraines, dizziness and nausea, light diarrhea, muscle, joint and nerve pain, sore throat and cough, swollen eyelids, fatigue, tiredness, and difficulty to taste and smell.

– Headache, Migraine, sore throat, and cough.

– Migraine, sinus infection, headache, cough, ear pain, sore throat, dizziness

– Tested positive in November with COVID.

– Cough, dizziness, still no smell or taste, headache

Lower respiratory tract congestion, Arthropathy and Pain of skin

23U-98655-35947

– Yesterday my armpit starting hurting. I found a soft swollen lump deep into the crook about the size of a nickel. Tender to the touch. It hurt less today and smaller maybe marble sized but still there.

– Skin pain everywhere.

– Skin pain like the nerves are over sensitive.

– Post Nasal and Chest congestion

– Sinus and bronchial congestion

– Back pain. Lethargy. Brain fog

– Probably sinus infection, bronchitis.

– Joint issues.

Pneumonia, Limb discomfort and Brain fog

23V-26097-20715

– Leg heaviness

– Left big toe has been numb since the morning after my shot, starting to think its a swollen lymph node somewhere causing pressure

– Increased heart rate and a foggy head

– Soar throat runny and stuffy nose

– Lymph node under injection arm is very swollen abs left big toe (shot side) is numb which happened with first shot too

– Very congested and soar throat

– Stuffy runny nose and chest congestion

– Sinuous and chest congestion

– Sinuous and chest congestion although much less then before

– Head congestion

– Head congestion, cough

– Pneumonia

Perinatal depression, Delivery and Sinus pain

23V-30698-57744

– Tightness in my chest and increased heart rate

– Runny nose

– Ear ache

– Sinus pain

– I've had a much more severe headache over the past 3 days than what I experienced before. This has coincided with my menstrual cycle (started on Sunday, headaches began Monday), so I'm unsure if this may be why.

– Nasal congestion and sore throat

– Runny nose and sneezing

– Runny nose, headache, and sore throat

– I gave birth to my son 10 weeks early, was diagnosed with postpartum depression, and have had a minor stomach bug this past Friday through Sunday.

Respiratory tract infection viral, Productive cough and Diarrhea

23V-39994-09663

– Aching joints

– Worsening joint pains but likely due to GVHD following weaning of immune suppression post- BMT

– Diarrhea

– I am s/p a bone marrow transplant in September 2020. I had my booster shot of Moderna on 8/20/21 and had a mild recurrence of my GVHD of the skin requiring escalation of my immune suppression regimen.

– Viral respiratory infection with cough, sputum and runny nose lasting 1 week. I'm s/p a bone marrow Tx and after my 3rd Moderna booster, I had a brief recurrence of my skin GVHD and had to go up on my immune suppression for a few weeks.

Uterine disorder, Pancreatic disorder and Cardiovascular symptom

23W-13003-33593

– I am very cold.

– I had Covid from Thanksgiving into mid December. I ve suffered many health issues since. I feel like I have covid minus the shortness of breath all over again.

– Very painful continuous migraine.. No appetite.

– My arm pit hurts where my lymph nodes are located. Migraine is horrible! Also notified our Occupational Health afterspeaking with my doctor.

– My muscles burn however covid has kept my health so down especially breathing that today moving is tough. Joints cracking n popping is disturbing!

– Struggled all night with itching all over!

– Experiencing a bit of confusion.

– Nose bleeds.

– Struggling with disorientation & itching throughout my body.

– Still experiencing a sense of disorientation.

– Having severe pain in both legs with no explanation (scheduled radiology) Saw my doctor in person

– Extreme fatigue, very disorientated, frequent diarrhea, muscle weakness PCP visit

– Diarrhea came back.. abdominal pains.. migraines & fatigue. It s been an on ongoing struggle since I had covid late November into middle December. I started to feel better in mid January until the shots. I feel I got the shots way too soon. Saw my PCP & will see specislists soon.

– Struggling with diarrhea. Went to ER for dehydration & HBP. Abdominal pain. New medications treating bothas M it s chronic. PCP & Specialists

– EPI, HBP, Crohn's my entire digestive system has not been functioning correctly. I ve had extensive tests with inconclusive results.

– Unable to recover from diarrhea & extreme fatigue plus severe abdominal pain. I have to have surgery for a problem that did not exist prior to COVID & the Moderna shot. Multiple specialists in office visits.

– Had surgery. I had a piece of my Uterus grow back into a full size uterus & had to have a 2nd hysterectomy. Surgery

– I had joint pain after my booster & it s getting worse not better. At 1st I thought it was just aches from a shot but it s not getting better.

– It felt as though I was having a heart attack. My D dimer is positive & really high! Wearing a heart monitor for 30 days

– After booster I immediately had joint pain & issues. My heart is struggling but no doctor will admit it. Abnormal EKG & ECG

Burning mouth syndrome, Nerve injury and Glossitis

23W-14180-52495

– Metallic taste in mouth

– Tingly tongue that comes and goes

– Tingling lips and tongue that comes and goes. Also a thick feeling tongue.

– Roof of mouth irritated, perimeter of tongue irritated and tingly. On and off numbness tingling feeling on inside of lips.

– Sore burning tongue and roof of my mouth. Tongue twitches and feels thick

– Burning roof of mouth, twitching tongue,

– Burning mouth

– A burning mouth

– Burning mouth ENT visit

– Burning mouth syndrome serve anxiety and depression nerve damage

– I have been diagnosed with Burning Mouth Syndrome. I now see 2 different doctors for my condition

– Burning mouth syndrome

Muscle contractions involuntary, Lower respiratory tract congestion and Rotator cuff syndrome

23W-79012-81224

– Itchy throat, stomach cramps

– In dizzy and shakey today. Super tired, I did a little but this mir5 and now I'm paying for it and cant get up. Super nausea

– Why can't I get rid if diarrhea?? I'm feeling better otherwise. Even from my long covid

– I feel better for the most part but am having chest congestion again w the scratchy throat as well as nausea is in waves. Will my 2nd dose clear it all up?

– Feeling tired again and have sore throat and chest congestion. Coughing up a bit of phlegm. And I'm nauseous today. Wasn't feeling well enough to go get 2nd shot today. I go on Thursday. Now I'm worried I somehow got my symptoms back ??

– I'm having covid eye issues like conjunctivitis. The injection site is t itchy anymore and my chest pains are better

– I feel like I have covid again. This is how I felt when I first got it. Maybe not quite as miserable but close. My head is full a d my chest is hurting and tight. I've got a headache and chills, body aches, dizzy. Can someone tell me why?

– I'm still sick. I have chest pains, body aches, headaches, nausea, twitching, my period won't stop and I've had it for 3 weeks straight now. What is going on? My head is packed abd my chest too. I feel like I did when I first got covid.

– I'm so tired. The fatigue feels like it's only getting worse. Is this going to last forever?

– Got to negative covid test so this is either an adverse reaction or it's made my long covid way, way worse. Can't do much other than rest. I'm weak and fatigue is bad. Tum hurts &nausea, head hurts, my eyes hurt, my body hurts wide & varied symptoms.

– More twitching, more pain like my bones are hollow, still getting bronchial congestions, sleeping a lot after not sleeping.

– I have tinnitus and the contractions in my hands and feet are still happening and now I'm afraid to walk anywhere outside of home. I can't get over this, I'm sick all the time. I thought long Covid was bad until I got vaccinated.

– Rotator cuff issues - had to go to urgent care...More skin rashes, yeast, more pain, weight gain, more fevers, varied heart rate and more

Eye hemorrhage, Blood pressure decreased and Eye disorder

23X-25119-15479

– Swelling in throat, fast heartbeat , tired

– Throat feels tightness

– Urgent care on 9/23/2021Throat swallon.

– Still having headaches n dizziness Left eye blood vessel poop. MRI February 3

– Where i got my vaccine. They gave me 50mg of Benadryl took vitals. Didn't let me go home till my blood pressure went up.

– Not being able to hold food

– Stomach today was upset

– Left eye had to see a doctor n a eye doctor never had a problem before with my eye ophthalmologist

– Im still getting on n off Rash on my body.I will be calling the doctor again.

Inflammatory marker increased, Vestibular disorder and Vitamin B12 decreased

23Y-15203-30180

– Sweating, heavy sensation in arm

– Runny nose

– Weakness and feeling slightly light headed

– Nerve pain in arm of shot, intermittent feeling I could pass out

– Elevated heart rate

– Swollen lymph node, sweating, a little lightheaded

– Vestibular symptoms, sweating

– Vestibular

– Feeling faint Vestibular symptoms have been an issue since my booster

– Vestibular symptoms. I got vestibular symptoms the next day after my booster. I've had lingering symptoms and am starting to get pretty nauseous driving a car.

– Increased inflammatory markers and low b12. Regular Primary Dr Visit

Polymenorrhea, Menstruation irregular and Hot flush

23Y-18855-17620

– Hot flash here and there, no true fever

– I forgot to report on Friday (the day of vaccination) that I got my period two weeks early. Could be coincidence but thought I'd mention it.

– Enlarged and very painful lymph node left upper neck

– Swollen/painful lymph node in neck (2 weeks after 2nd shot, then again 1 month later). Menstrual irregularities since 2nd shot (unpredictable and happens more frequently).

Impaired healing, Ligament sprain and Frequent bowel movements

23Z-15125-89917

– Presumed muscle strain right lumbar-gluteal region. Baseline soreness with sharp spasm pain on hip extension.

– Left knee sprain, taking unusually long to heal. >2 weeks to date. Can't recall any specific injury/trauma.

– Intestinal rumbling, cramping and increased frequency of bowel movement, past 3 days. Not clearly associated with a specific food.

– 3 days ago dvlpd runny nose, watery eyes, felt like allergies. Day 2 sore throat, no other COVID symptoms, no access to test (travelling.) Yesterday sinus congestion, drainage. Never any cough, SOB, fever, chills, muscle aches. Felt like typical URI.

Pelvic mass, Obstructive airways disorder and Hallucination

23Z-20496-10195

– Tingling arms

– Never got check in during first few days, had fever 101.6, nausea, body aches, chills, chest pain, headache. I am a long hauler though so maybe accounts for more significant reaction

– Chest pain, nausea

– Dizzy and hot

– Chest pain

– Chest pain-cardiac

– Nausea, diarrhea

– Cardiac pain, tachycardia, palpitations, tingling extremities, runny nose.

– Night sweats

– Obstructive lung disease

– Worsening chest pain, hallucinations, confusion, pelvic mass

Feeling hot, Myalgia and Dyspnea

242-19623-60146

– Very hot while sleeping which happened with shot #2 for a couple weeks as well.

– Sore throat , cough, positive covid test

– Contracted covid 19 and am on day 16 of recovery. Severe sore throat, cough, headache, body aches.,fatigue is still lingering with the cough . I'm an overall healthy person and it was tough.

– Diagnosed with covid 22 days ago. Still have fatigue , headache comes and goes, sore throat sometimes, and breathless. Have sore joints and achy muscles sometimes.

– Fatigue from having covid. Breathlessness.

Migraine with aura, Breast swelling and Ventricular extrasystoles

242-29266-23303

– I had to use my inhaler for wheezy lungs it was very unusual for me

– Slight swelling in neck glands. Feel overly hot at times, but not actual fever.

– Swollen glands in neck are smaller and less painful

– Swollen lymph glands in neck, both sides

– Swollen lymph glands in neck, impaired vision

– Inner ears hurt along with swollen lymph nodes.

– Sore throat with slightly swollen glamds minor coughds

– Swollen lymph nodes/ glands, stuffy nose

– Swollen glamds

– Swollen glands neck, throat, breasts

– Swollen lymph nodes neck and breast

– Swollen glands in neck and breasts

– Swollen glands neck and breasts

– Seems to have exacerbated my Myasthenia Gravis. I have have been suffering from extreme tiredness, just exhausted. My brain feels confused./fuzzy, My eyesight is messed up my new glasses are useless. My shoulder joint aches vaccine arm. I'm not ok.

– Can't seem to get enough sleep. I should be over any reactions but still need naps throughout the day like a baby, keep having isual aura scintilating migraine headaches, swollen lymphnodes in my neck /throat, still feel exhausted and weak.

– I just can't seem to get back to my old normal. Still swollen glands can't shake feeling exhausted, random short term vicious headaches joint pain in shoulders, knees, feet and hands. Random eyeball pressure pain, and facial pain.

– I am just so tired all the time. I sleep and it is never enough! My lymph nodes are getting smaller. I feel worn out, like i have no gas left in my tank. I breathe deeply and it is not refreshing. I have to take a day off from work so i can sleep!

– Premature heart beat P.V.C. and another noted anomaly post Covid-19 vaccination but cannot remember the name the Dr called it. Have to take a new heart medication called Metropolol day and night now. Also had to wear a heart monitor

Cold-stimulus headache, Muscle tightness and Hypersomnia

242-32646-85328

– After my 1st dose I experienced body aches & was exhausted. I slept most of the next day. After my 2nd dose 1-4-21 I have had flu like symptoms. Severe body pain, headache, feverish, chills.

– Tight painful muscles, sweating, feel like I have the flu

– Severe bilateral arm pain & chest pain with a rash on chest

– Extreme dizziness & extremity numbness They suggested I go to ER bc of extreme dizziness & heart palpitations

– Dizzy

– Dizziness

– Constant dizziness & brain fog

Mineral deficiency, Electrolyte depletion and Vitamin B12 decreased

243-21575-63343

– Within 10 minutes following injection and lasting roughly 4 hours. Strange little air bubbles with slight breathing/swallowing issue.

– Random mild neck & chest pains late yesterday evening.

– Temporary Light headedness

– I received my 1st shot last tuesday evening. That afternoon, I started my cycle. After receiving the shot, my cycle stopped completely. I am not prone to irregular periods. I am typically every 26 to 28 days consistently.

– 6 days after 1st shot, sitting on couch, became very dizzy. Eyes difficult to focus. Most activity left side of head. Took about 1 hour to recover. Took asprin. Following day, again for a few seconds. Days 10/11, aches, weakness, loss of work.

– Many brief lightheaded episodes during the day.Because I work from home, I don't have to work about this happening while driving unless I run errands.

– After the 2nd shot, 3 days of severe muscle aches and pain. Yesterday mild headache.

– Feeling drained and tire easily

– I have been consistently drained

– Low b12 I was able to balance out with daily supplements

– Breast lumps Doctor visit, scheduled hospital testing to diagnose

– All 3 Moderna shots I've received have caused electrolyte/trace mineral depletion for days/weeks afterwards.. Pedialyte Advanced Care reverses the symptoms quickly.

– Since a year ago May after receiving my 1st dose of Maderna, I have experienced continuous muscle fatigue, electrolyte & mineral depletion. The symptoms increase with every dose of vaccine. They never go away completely. I must work & push thru.Bills

– Extreme muscle fatigue. Trace mineral/electrolyte depletion.

– Breast lump again. Same place as last time after previous vaccine.

Dysphagia, Pharyngeal swelling and Urticaria

243-22940-24624

– I had fever to 100.5 the day after the shot and chills. About 13 minutes after the shot I felt lightheaded and had slight throat swelling that never progressed. They checked my BP was 140/70 and pulse 112 at that time.

– Epigastric pain started 11/22. Hives started 11/21. I had an immediate reaction within 1 minute of the shot this time with throat swelling and difficulty swallowing. That lasted about an hour and didn't not require treatment.

– ongoing hives

Celiac disease, Joint stiffness and Gait disturbance

243-28929-85817

– Increased hip joint and lower back stiffness and pain lasting for a couple of weeks. Sore upper arm at and around injection site for about 3 days post injection.

– 4 hrs post vaccination am experiencing pain in right hip radiating down rt thigh to knee. Trouble lifting leg. Was already experiencing some pain in hip prior to injection, but since injection and ride home has gotten worse and have trouble lifting right leg w/o intense pain radiating from hip down thigh. Had difficulty walking after arriving home, but has gotten somewhat better after walking around a bit. Have a pre-existing Dr. appt tomorrow due to the prior pain in hip and will report the worsening after vaccine to him. May be coincidental...driving may have worsened pre-existing problem.

– Have been sneezing a good bit-runny nose.

– Pain in right thigh from hip to knee. Painful to lift leg. Has been occurring for four days. Was very painful when walking on Saturday, Hip/leg joint felt like it was giving way upon rotating leg. Used cane to walk. Has improved some today.

– Diagnosed with Celiac sprue.

– A pre-existing problem prior to covid vaccination

– Increased pain in both hip joints, but worse in right hip joint,especially after sitting for awhile and then standing up.. Pain and stiffness in lower back, especially after sitting for awhile and upon arising in the morning.

Contusion, Hot flush and Throat irritation

244-18387-15581

– I noticed a bruise on my left inner leg thigh this morning while getting ready for work. I didn't hit my leg yesterday at all.

– Had hot flashes this morning and my lymph nodes under my chin were swollen upon awakening this morning.

– Swollen lymph nodes under my neck upon awakening this morning. Sore throat.

– Chills, feeling feverish, muscle aches, headaches, fatigue.

– Little bit of throat irritation.

– Sore throat

– Hot flashes

– Bruise on my right lateral knee. I noticed it while oiling my skin last Monday morning. Its starting to fade.

Shoulder injury related to vaccine administration, Middle insomnia and Arthralgia

244-27750-52266

– Have had left shoulder pain since first shot, aggravated by second. I think I may have developed "SIRVA" (shoulder injury related to vaccine administration)

– Shoulder still quite sore. Wakes me up at night. ?SIRVA.

– Shoulder still aches. ?"SIRVA" (shoulder injury related to vaccine administration)

– Shoulder pain persists

– Increasing left shoulder and upper arm pain.

– Persistent left shoulder and upper arm pain

– Persistent left shoulder pain

– Persistent left upper arm and shoulder pain.

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