Their Stories

Breast inflammation, Mastitis and Diverticulitis

1.15.2021 – Sore throat

3.18.2021 – Nausea and diarrhea. Dont think it had anything to do with vaccine because other family members had similar issues.

3.25.2021 – Headache

12.9.2021 – Vomiting and diarrhea was last night. I believe was related to a food issue but can't figure out what exactly.

12.17.2021 – Infection in breast. Believe it is in a duct. Had same issue several months back.

12.24.2021 – Continued inflammation/infection in left breast Doctor's visit in person

12.5.2022 – Shingles, diverticulitis, random unknown allergy

Hypertensive urgency, Hypertensive crisis and Blood pressure inadequately controlled

3.9.2021 – Facial flushing, increased heart rate, briefly labored breath, lower back pain on left side

3.10.2021 – Right foot swelling and joint pain when walking, lower left lumbar pain when walking

3.31.2021 – I could taste the vaccine on the first shot ( I never mentioned it then) and I tasted it again on the 2nd dose

4.1.2021 – Weakness, lightheaded, elevated blood pressure, asthma coughing

4.2.2021 – Increased asthma cough and several hours of elevating blood pressure that reached 205/104. Plus severe weakness I considered a trip to the ED and I notified my Drs office about the hypertensive crisis Id experienced.

4.3.2021 – Fatigue, weakness, severely elevated blood pressure throughout the day and night even though I take my BP meds 2x per day. Headaches and hypertensive crisis isnt managed with my BP medication

4.4.2021 – Very elevated blood pressure upon sitting and standing. Weakness. Its like my blood pressure meds stopped working after the 2nd dose of Pfizer vaccine

4.5.2021 – Acute elevating BP led to hypertensive crisis and trip to ER for treatment BP at 222/98 upon admission to ER at (b)(6)

4.6.2021 – Weakness, headache, 6 days of hypertensive crisis leading to Emergency Room visit, and in hospital care trying to determine why my blood pressure medications are no longer managing my blood pressure after receiving my 2nd Pfizer dose last Tuesday, Mar 30th Blood pressure was well managed until 2nd dose Pfizer vaccine administered 3/30/21.

4.13.2021 – Hypertensive urgency Trip to ED, given vasodilator and hospitalized 4/5-4/7 at (b)(6). Suspect adverse Immune response. post discharge still have Hypertensive urgency, visit to Primary MD 4/13 with Cardiology appt 4/16 at (b)(6) My blood pressure meds are no longer working and when I take my AM and PM meds they cause my Blood pressure to spike up to dangerous numbers.

5.4.2021 – I continue to have elevated blood pressure and it appears my blood pressure meds are not working like they did prior to the vaccinations. Somehow, the vaccine has messed up the effectiveness of my BP meds. Post hospitalization for blood pressure urgency, I saw my cardiology dept. i need to contact their office as my blood pressure is erratic and spiking to urgent levels still

5.11.2021 – I am still struggling with my blood pressure elevating. My BP meds are no longer managing my BP since I got the second Pfizer shot

9.29.2021 – My blood pressure readings are still erratic and reach hypertensive numbers daily. I am still under medical care for it and have tried several other medications that were ineffective. PCP, cardiology, nephrology, allergist

3.31.2022 – Since April of 2021 since the vaccine, I continue to have high blood pressure spiking that is difficult to control

Skin hyperpigmentation, Skin discoloration and Axillary mass

9.16.2021 – Random painful bumps on body.

9.27.2021 – Since the first shot of had bumps that turned into black marks and a rash pop up on my thigh when I got my second shot.

10.22.2021 – The bumps and aftermarks are still popping up and not going away

9.26.2022 – Bumps still appear on the arm I received the shot, but they disappear and leave marks like hyperpigmentation. I also had a lump appear under my armpit under the same arm I got the shot in, I went to the ER, made a doctors appt for proper imaging.

Proctectomy, Ileostomy and Lung neoplasm

1.18.2021 – Numbess in hands and feet, but due to chemotherapy, not vaccine

9.28.2021 – Resection of rectal cancer and ileostomy placement in May. Ileostomy take down in Sept. rectal cancer diagnosis in Oct 2020, prior to covid vaccines

11.30.2021 – Unrelated to vaccine

3.3.2022 – Redness, swelling and tenderness in a joint on my right hand Personal evaluation by physician friend

4.18.2022 – Fever to 100.8 26 hours after the vaccine which was after the checkin

5.26.2022 – A new lung lesion was found on CT scan which is done quarterly due to rectal cancer (diagnosed 10/2020)

Burning feet syndrome, Disturbance in sexual arousal and Libido increased

1.18.2021 – Yesterday I had chills, feet were cold yet burning & pain in my feet!

2.6.2021 – Headaches, but not sure if it is from weather changes or ??

2.13.2021 – Headaches

2.21.2021 – Extreme sexual desire!

2.22.2021 – Mild headache, joint pain that was there prior to injection, and some tiredness; nothing serious.

2.23.2021 – Back/Hip Pain is NOT from vaccine!

3.6.2021 – Chills, achiness

4.3.2021 – Coldness and pain in my feet/legs, headaches.

8.21.2021 – Very mild achiness, and bouts of extreme sexual arousal; intense orgasms.

Skin wrinkling, Rash pustular and Skin fissures

4.2.2021 – Dry throat and mouth

4.4.2021 – Slight for both: Runny noise & ear ache

4.9.2021 – Mild sore throat

4.16.2021 – Wet cough (mild) Health providers Pharmacist

4.25.2021 – Slight runny nose (allergies?)

4.26.2021 – Wet cough & runny nose (allergies?)

4.28.2021 – Nagging wet cough (ear drums are starting to hurt because of it)

4.29.2021 – Slight ear ache & persistent wet cough

7.23.2021 – Rash covering 95% of my body (dark, dry & patchy spots with small bumps on my torso and raised yellow fluid-filled areas. Hands & palms extremely dry, withered, cracked & digits swollen). Dry patchy rash on back of hands & forearms before vaccinated No recent COVID test; 1 last year was negative

10.23.2021 – Still struggling with a full-body rash but it's slowly getting better with topical treatments I've been prescribed (bleach bath and clobetasol).

Abdominal pain, Abdominal pain upper and Chest pain

11.14.2022 – Chest pain starting about 22 hours after initial shot. Also had chest pain about 24 hours after first booster.

11.15.2022 – Light chest pain returned briefly around 9p last night but only lasted an hour

12.12.2022 – Starting on 12/4 I've had abdominal pain (sharp) off and on (mainly focused on the right stomach but wasn't isolated). It eased up about 3-4 days later but still happening occasionally but weaker. Scheduled for CT on 12/16. Primary doctor visit

Nasal polyps, Nasal mucosal discoloration and Anosmia

1.7.2021 – runny nose

2.3.2021 – chronic nasal congestion

2.10.2021 – I check my temperature at work and have noticed that since my vaccine over a month ago my temp has consistently been 99.0 and above on most days. pre vaccination it was usually 98.2-3

4.7.2021 – unable to smell after two months of congestion and low grade fever in the 99.3 range whereas before vaccination i ran around 97.6, still have bright yellow/orange snot every morning

1.6.2022 – Recurrent nasal polyps and sinus infections surgery

Oral pruritus, Appetite disorder and Gastrointestinal pain

3.17.2021 – Mouth and throat started itching within 5 minutes of shot. Took 50mg benadryl when I got home. No further symptoms.

3.18.2021 – Extreme abdominal cramping. Shot lication feels like I've been hit with a bat. General malaise.

3.19.2021 – If I had insurance, I would have gone to the er 2 nights ago for gut pain. The itching in throat & mouth are persistent.

3.20.2021 – Taking Toradol for abdominal pain. Still have mild itching in mouth & throat.full blown case of diverticulitis. Not sure I'll take shot 2.

3.21.2021 – Mouth/throat itch. Still taking toradol for abdominal pain. If I had known I'd feel this bad, I wouldn't have gotten the 1st shot. I have no insurance, so I have not sought out medical care.

3.22.2021 – Taking toradol for gut pain. PCP

3.24.2021 – Today is the 1st day since shot that I have been able to eat 'normal' food. Still queasy and have gut discomfort.

Vitreous floaters, Blepharospasm and Visual impairment

3.26.2021 – Fatigue that comes and goes. Still occasional joint pain. Persistent ache at injection site.

7.2.2021 – Excessively heavy menstruation that required doctor consultation.

11.27.2021 – Unsure if it's related: muscle around right eye has been spasming regularly and I've developed a light-type floater in that eye that blocks my vision a bit. These were never issues I experienced prior in my life.

1.24.2022 – Head cold symptoms over last 5-6 days. Congestion, small cough, mild headache. Three negative Covid tests. Symptoms improving on day 4.

Injection site vesicles, Blister and Dyspnea exertional

1.24.2021 – Sore throat

1.29.2021 – Stomach cramps and diarrhea.Still have some blister like bumps at the injection site that itch but not as much as before.

2.9.2021 – Loss of appetite

2.13.2021 – Sore throat, irritated

3.8.2021 – I felt like I had the flu.

3.15.2021 – I feel like I have the flu.

3.22.2021 – Constant productive cough.

8.11.2021 – Skin rashes and blisters. Lack of energy and short of breath on exertion. Not sure if this is related to the vaccine. Had a physical last week and having a follow up appointment in 2 weeks. Physical

Sensory loss, Streptococcal infection and Ear pain

12.24.2020 – Left pinky finger is numb, notice it around 6:30 am on 12/24 until now at 2:30 pm. Started ion the whole pinky and now just from the middle to the tip

12.25.2020 – My right pinky finger is still numb, but now its only from the first line to the top of my pinky whereas yesterday it started on the whole pinky

12.26.2020 – My right pinky still has some numbness, mostly towards the tip and along the inside side of the pinky, closes to my ring finer

12.27.2020 – My right pinky still has loss of sensation, mostly the tip and inside near my ring finger

12.29.2020 – My right pinky finger still loss of sensation. But last night my right thigh started hurting. It still hurting and it's been over 12 hrs

12.31.2020 – Right pinky is still having some numbness and loss of sensation. Seem to be getting better but not gone even after a week from getting the vaccine. Also the pain in my right thigh is still present

1.6.2021 – Strep throat, ear ache, headache, i don't believe it's related to the vaccine.

Pulmonary pain, Muscle twitching and Neuralgia

3.31.2021 – Strange taste in mouth. Taste like a metal or strong medicine.

4.2.2021 – I had joint pain pretty bad a few hours after getting the shot, it went away by the next morning. I forgot to check the box for that on day one.

4.27.2021 – My legs are burning and feel like they are on fire. The nerves are twitching and hurt so bad. My wrists hurt, my lower back is hurting and hip. My left lung is hurting and Im having shortness of breath. Ive had Pulmonary Embolism 4 years ago due to a surgery.

Sacral pain, Muscle strain and Syncope

4.5.2021 – Muscle cramp left breast. Lots of stomach gas and intestinal gas. Diarrhea. Lasted several hours after Easter dinner. All symptoms have subsided and are no longer present.

9.22.2021 – Fainting

2.16.2022 – Back pain from a fall. Had pacemaker installed due to arrhythmia. No issue relative to covid-19 vaccinations; all is well. Pacemaker surgery

4.14.2022 – I have Stenosis and related back pain in the sacrum Prednisone script, 3-day course from my PCP

9.30.2022 – No

Trismus, Visual impairment and Brain fog

3.31.2021 – Migraines

4.3.2021 – Lightheaded

4.4.2021 – Brain fog

4.5.2021 – Migraine

5.1.2021 – Really bad migraine lasting 2 days

5.17.2021 – I have had consistent migraines since getting the first vaccine. Pre existing neurological issues (brain fog, obscured vision episodes) have also surged since then

5.24.2021 – Ive been having terrible migraines. Ever since getting the vaccine my migraines have been getting worse and worse, especially around my period. Today I had one so bad that i vomited. Theyve been happening more frequently since the second shot

5.31.2021 – Migraines have been getting worse.

6.9.2021 – Migraines have gotten so bad.

10.27.2021 – Devastating migraines. Lock jaw.

Tenderness, Swelling and Injection site swelling

1.13.2021 – Started feeling itchiness at the site of injection on day 8, which worsened next day. Redness and swelling was also noted. Applied OTC anti histamine cream for 2 days (day 9&10). Those symptoms resolved on day 11.

1.30.2021 – Staffs nose, rhinorrhea, sneeze - not sure if its related to the vaccine

11.6.2021 – Tenderness in left (injected side) axilla

11.7.2021 – Pain in left (injected side) axilla

10.28.2022 – Mild sore throat, stuffy nose, rhinorrhea

Initial insomnia, Poor quality sleep and Sleep disorder

2.4.2021 – Did not sleep well.

2.6.2021 – Not sleeping well although its unclear if this may be related to vaccine.

2.10.2021 – Difficulty falling asleep or staying asleep. May be coincidental. Otherwise fine.

5.31.2021 – Runny nose, mild fever (2 nights), chills (2 nights).

9.30.2021 – It has been a week since I got the shot. Beginning about 6 hours after the injection, my arm was very sore and I felt mildly fatigued for the next 24 hours.

3.25.2022 – Sinus infection with extremely bad cough.

9.24.2022 – Head cold or allergies with runny nose and lots of sneezing. Occasional coughing.

Osteomyelitis, Electric shock sensation and Pulmonary pain

3.14.2021 – I couldnt fall asleep. Different than any other insomnia Ive had.

3.27.2021 – Arm rash at injection site

4.14.2021 – I think I did have the tiniest bit of itching at the injection point. Gone now.

10.30.2021 – Myelitis flare weak arm leg skin pain burning shock from neck down both arms

11.1.2021 – Myelitis flare up

11.16.2021 – Sore throat, earache, vertigo, congestion

11.30.2021 – Headaches. 1 day of body aches.

10.15.2022 – Cold symptoms

10.22.2022 – Sore throat runny nose fatigue

12.17.2022 – Fever fatigue headache lungs hurt cough

Bowel movement irregularity, Frequent bowel movements and Gastrointestinal pain

1.29.2021 – Circular rash (2 inch diameter) and itchiness developed at injection site on 24 Jan2021.

2.15.2021 – Abdominal discomfort and reduced appetite

3.4.2021 – Headache

3.25.2021 – Since COVID-19 vaccinations, experiencing irregular bowel movements, more frequent, and looser with some mild cramping. Don't know if coincidental or related to the vaccine.

5.13.2021 – Extremely severe cold (?). Onset of symptoms 16 days ago. Still experiencing a cough and chest congestion. Excessive and very hard cough was the worst symptom during spell of illness. Tested negative for COVID-19 3 times during spell of illness.

8.12.2021 – Have experienced a very bad cough on 3 occasions since vaccination. Duration has been over week all 3 times. Cough similar to a cough associated with the common cold but significantly more intense.This cough was not normal for me prior to vaccination

12.6.2021 – Severe congestion, harsh cough, headache, muscle aches, and fatigue.

Anisomastia, Anovulatory cycle and Mammogram

1.22.2021 – Longer than usual menstrual period - still spotting after a week

1.29.2021 – Exacerbation in left shoulder and neck pain

2.21.2021 – Cold symptoms, headache, low grade temperature Tmax 99.5F, body aches

3.5.2021 – Missed my period in February. NOT pregnant. Had 2 negative pregnancy tests. But i also might be nearing menopause....

5.7.2021 – Recent mammogram showed new right breast asymmetry - repeat mammo and ultrasound is pending

8.6.2021 – Anovulatory cycles

Presyncope, Arrhythmia and Dysgeusia

1.22.2021 – 5 minutes after vaccine I sensed a momentary metallic taste, then a sudden rush of severe dizziness where I thought I might pass out. That ended in 10 seconds then I felt a cool tingling feeling throughout my chest which dissipated within moments and Ive been fine since- scary. I always tolerate needle sticks and procedures fine and it didnt happen until minutes later so I dont think it was a vasovagal response to anxiety (Im an RN)

2.16.2021 – Slight increase in usual arrhythmias

3.25.2021 – Increased arrhythmias

Urticaria, Rash and Chills

3.3.2021 – Note: Chills may not be related to vaccine.

9.1.2021 – Hives-like rash began late March as 2 mosquito bites. Still with me. Havent seen doc. Curious if immune related. Health same other than this. Last question requires answer, but Ive no idea.

10.27.2021 – The rash is very mild now, was pretty bad earlier; never had before April; likely unrelated to vaccine Feb., March 4. Not relevant unless others report similar.

10.29.2021 – The ongoing rash since April, which likely is unrelated to vaccination

10.30.2021 – Rash, ongoing from April (few weeks after 2nd vaccination) likely not vaccine related

Mucosal hypertrophy, Throat clearing and Increased upper airway secretion

3.14.2021 – I tend to cough and clear my throat a lot because I have allergies; but the mucous seems slightly different, perhaps thicker and more of it than usual. This has been true for a couple of days.

3.15.2021 – My arm and surrounding area(upper deltoid at the joint) was slightly hot and swollen. I also had tingling in my index and less in middle and ring fingers in same arm. Ive felt a little feverish but havent Ken my temp. I had breast cancer 13 years ago and maybe I should not have had the shot in my surgery side arm. Missing some lymph nodes.

3.16.2021 – I have OPT for sciatica so I told the therapist about this, and I want to identify the shoulder AC joint for yesterday, probably not the deltoid, and the supraspinatus muscle

3.17.2021 – Diminishing daily

3.18.2021 – Still some tingling in index and middle finger of shot arm. Increased coughing and some hoarseness.

12.13.2022 – I had my second Covid 19 infection November 10. I am still coughing and clearing my throat. I have had asthma post infection. I am also more tired and my heart seems to be beating irregularly off and on.

Mastectomy, Breast cancer and Asthenia

9.30.2021 – My feet and ankles hurt. Pain comes and goes intermittently, but occurs for at least 2 hours every day. Usually, Id rate it between a 2 and 4 on a 10 point scale. But sometimes its really debilitating, around 6 or 7 on 10 point scale.

4.2.2022 – I was diagnosed with breast cancer in October 2021 and had a bilatetal mastectomy March 18, 2022. No symptoms or problems related to Covid or vaccine. None of my health issues are related to covid or the vaccine.

Mood swings, Mental impairment and Irritability

4.1.2021 – Intestinal gas

4.15.2021 – Tired and irritable.

4.22.2021 – Diarrhea and headache.

5.12.2021 – Cant sleep

5.19.2021 – My menstrual cycle has been worse since the shots and i have been more fatigued. I also have had trouble sleeping.

5.26.2021 – Couldn't sleep. Horrible gas. Joints hurt.

6.5.2021 – Tired, don't want to do anything.

6.9.2021 – I'm exhausted, my periods have gotten worse, my mental health has decreased and I've gained weight.

10.29.2021 – Exhausted, worse arthritis and worse menstrual cycle.

4.28.2022 – Increased menstrual difficulty, increased seasonal allergies, increased mood swings and migraines.

Cellulitis staphylococcal, Psoriatic arthropathy and Fibromyalgia

7.11.2021 – High blood pressure, vertigo, tinnitus, headaches, longer duration between periods, extreme fatigue I am going to the doctor tomorrow. I also had a negative covid test in April a couple weeks after my second vaccine dose because I had a headache that lasted more than a week.

10.16.2021 – Tinnitus- my ears are ringing, high pitched and steady

10.17.2021 – Tinnitus

10.18.2021 – Woke up with tenderness and swelling of lymph node under my left arm (same arm as injection site).

10.21.2021 – Sore throat

11.19.2021 – Congestion, runny nose, fatigue- caught a cold that my children had.

4.19.2022 – I was diagnosed with fibromyalgia and psoriatic arthritis and am still having trouble with tinnitus.

10.15.2022 – Had Covid in September and haven't felt back to normal since. Challenges with fatigue and stamina. Also am being treated for a cellulitis staph infection on my scalp

Sensitive skin, Injection site discomfort and Muscle spasms

12.22.2020 – Soreness at the injection site with movement but not pain.

12.28.2020 – Had cramps and diarrhea Saturday but i think it was from a different medication that i took and did not agree with me.that only lasted a short time

1.18.2021 – In the 12 th, i had slight joint pain, mostly in my wrists, but no other symptoms

4.14.2021 – No typical symptoms related to covid. Two weeks ago,developed sensitivity on my skin around right side of breast and bra strap area without a rash or any bumps Acupuncture

Anal pruritus, Anorectal discomfort and Eructation

1.31.2021 – Runny nose

2.2.2021 – Interestingly - I didnt realize HOW fatigued I was since the first shot. Today is the first day I have felt better. Also an interesting note. Yesterday I had a regularly scheduled allergy shot (1 of 4 intake) and I have never bruised from it nor had lingering effects over 24 hours. This time was absolutely different. I have a bruise and a harder knot feeling around that shot site. May not be related but felt I should report. Happy to have a follow up convo if needed.

2.4.2021 – It was like a migraine kicked in yesterday after I reported and only excedrin is helping. Not sure if related but reporting it. Included nausea, headache and general icky feeling from it. Took excedrin 6pm 12pm and today at 7am.

2.12.2021 – I had allergy shots 3 days after vaccine (environmental, dog/cat dander and insect/bee). I typically experience a little itching. For almost 5 days after the allergy shot (up to day 8 post-vacc) I had bruising aa really hard subcutaneous knot

2.19.2021 – Allergy shots caused bruising and a large knot in the arms that lasted multiple days. This has never happened prior to vaccine.

2.26.2021 – My right eye was tearing as my allergy medicine wore off. I dont typically have that happen. One bad migraine (might have been stress) but my shoulder and neck on the vaccine side (left) have been tight.

3.6.2021 – Weird taste in my mouth

3.7.2021 – Weird taste in my mouth still

3.11.2021 – Sour stomach, sour burps

3.18.2021 – Site of allergy shots (3/17) very sore and hard (knot like at site of the injections). Not like that pre-vaccine. Weirdly my right eye has been tearing up later in the evening. Only that eye (no contacts worn)

4.1.2021 – I forgot to mention last week I had a weird smell thing happen where I smelled cigarette smoke when no one was smoking ( I was in my car driving). Also have had increased sensitivity to my allergy shots (vespid and cat/dog).

4.8.2021 – I had heartburn/nausea and threw up last Friday night. Not sure what caused it. Lasted about 4 hrs of nausea. Threw up only once. Slept, ate a banana and felt better. Ate bland foods for the day afterwards.

4.17.2021 – I am not sure if this is connected or not. I have found that my rear end (anus) has been very itchy since having my vaccine. This usually happens when I have eaten something I am intolerant of.

Orthopnea, Gallbladder disorder and Painful respiration

4.27.2021 – Metallic smell and taste, randomly. Extreme thirst

4.28.2021 – Metallic smell and taste for a short time

5.1.2021 – Had a gallbladder attack but don't think it's related.

7.15.2022 – Shortness of breath, chest tightness, very aware of my heart beating

7.16.2022 – Shortness of breath, especially when lying down, hurts to draw in a deep breath, harder to breathe when lying down, better than yesterday. Appointment Thursday with pcp

7.17.2022 – Some tightness in my chest remaining but breathing has improved significantly

Night sweats, Lymph node pain and Lymphadenopathy

3.28.2021 – Swollen armpit lymph node on injection side.

3.29.2021 – Continuing armpit lymph node swelling and tenderness.

3.30.2021 – Armpit lymph nodes still swollen on injection side.

9.27.2021 – Swelling of the injection side armpit lymph nodes

4.12.2022 – Swelling of the lymph nodes in the arm pit on the injection side.

4.13.2022 – Arm pit lymph glands on injection side still very swollen and tender.

4.14.2022 – Lymph nodes still swollen and tender on the injection side.

4.15.2022 – Mildly swollen and tender lymph nodes on the injection side.

10.16.2022 – Night sweats

10.18.2022 – Night sweats last night again

10.19.2022 – night sweats

10.21.2022 – Mild night sweats