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Their Stories

What v-safe registrants wrote to the CDC after their Pfizer or Moderna shots, in their own words. Each card is one person, with all of their free text. This page shows only the longer stories: the 116,000 people who wrote at least 400 characters in all. The text is as the CDC released it, except that email addresses and phone numbers are hidden. You get a random set of these people on every visit.

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Hematocrit decreased, Red blood cell count decreased and Hemoglobin decreased

Y4H-25010-57506

After injection a slight numbness down my left leg for about 2-3 minutes.

Stiff neck and muscle pain across my entire shoulders area L-R.

Consistent muscular pain from injection shoulder to opposite shoulder.

Hand and feet pain, stiffness in the hands.

I forgot to mention but after both shots I had very vivid nightmares that last for about 5 days after each injection.

Muscular pain in lower legs and arms.

Abnormal labs. RBC, hemoglobin, hematocrit.(low)

Stomach distress and fatigue.

Running nose, night sweats and occasional sneezing.

Fatigue and muscle aches.

Gastrointestinal disorder, Urinary tract infection and Hypertension

Y4H-30771-64265

Stomach hasnt been feeling great the last few days

UTI and blood pressure up Follow up with dr

Rash over most by of my body. Went to minor med and got a shot and two prescriptions

Rash is still there but mild

Broke out with itching on arms and a few other small areas Tuesday. Itis pretty much gone now. Just started taking medicine minor med had given me for itching.

Continue to itch and whelps come up on my body from the reaction I had to the vaccine

Feeling of body temperature change, Taste disorder and Hot flush

Y4H-32754-64012

I was taken to a backroom after my injection

I feel Hot and sweating then cold and shivering. Back and forth all day.

My taste is off, everything is bitter.

Metallic taste in mouth. Flavors taste off and bitter.

Hot flashes continue. Still have a metallic taste in my mouth and everything is more bitter tasting than usual.

Metallic taste remains in my mouth.

Metallic taste in mouth.

Metallic taste in mouth

Change is taste

Change in taste

Metallic taste

Body aches, chills, joint pain, stuffy nose and headache.

Increased upper airway secretion, Oropharyngeal discomfort and Musculoskeletal discomfort

Y4J-15542-96051

Got extremely thirsty the first day after injection for both shots. The thirsty feeling wasnt reduced by drinking water.

Left side (happen to be the vaccine side): jaw, neck, arm. Numbness and discomfort.

Had a few loose stool in the past few days. Throat is still having some cold like feeling. Feels like fluid accumulation at the back of throat.

Joint pain in my hands that does not want to go away-still ongoing. (The joints between my thumb and palm.) It happened not too long after I got the vaccine and no other changes could have led to this. I am seeing a doctor soon.

Sleep disorder, Arthralgia and Pain in extremity

Y4J-18455-17405

Left arm is herts more than before hard to sleep the pain keeps me awake

Arm is really painfully to move

My left arm is very sore had to start taking pain meds to take the pain away so I could work

Arm is still sore and the pain is moving to the elbow . How much longer do I have to deal with this pain?

Left arm still hurts at the shoulder and moves to the elbow hurts more when I straighten the arm or lift it above my head.

Arm really hurts Doctor put me on steroids for a week

Pain is lower in my arm

Skin lesion, Pulmonary embolism and Blister

Y4J-20475-66460

Mild scratchy throat, mild nasal congestion.

Booster on 11/27/21. Pulmonary embolism diagnosed in ER on 12/1/21. However, had had orthopedic surgery on 10/11/21.

One round, 1 cm diameter very red itching and tender lesion noted yesterday, new since skin check by dermatologist 2 weeks ago. Appears as a herpes lesion. It is under my left breast. Have appt scheduled with dermatologist.

1 cm flat red blistered itching skin lesion that erupted on 4/26 is still present. Dermatology appt is scheduled for May 18.

Small red area below left breast previously reported still there.

Contusion, Migraine and Lymph node pain

Y4J-25264-48594

Bruising

Painful lymph node

Potentially a swollen/painful lymph node in my neck. Not totally sure. Needs checking out.

Migraines are getting worse but could be other factors.

Increasing migraines

Believe booster was administered into shoulder capsule. Caused a lot of pain. Poor placement plus I am 5'7" and under 130lb - my weight indicates a different length needle is needed for deltoid according to medical papers on this topic.

Injection site bruising, Influenza like illness and Injection site pain

Y4J-26635-92044

No

Bruising around injection site, but no aching and no pain when touch.

Continue to have bruise around injection area. But no pain to the touch.

Bruise continues at injection area but no pain or pain to the touch.

Continuing bruise at injection site but no pain in area or to the touch.

Bruise continues at injection site but no pain and no pain to the touch.

Slight pain when touch injection site.

Had flu shot 6 days ago and felt fatigued with mild flu-like symptoms for several days.

Altered visual depth perception, Neuropathy peripheral and Flank pain

Y4J-66794-63284

Fatigue. Major fatigue.

Rapid heart rate, 115 stationary, 150 with pain when I walk to the kitchen

Poor balance. I had COVID last May, balance was a serious problem for all of 2020. Very weird for it to come back so hard today. It's NOT dizziness. It's like my perception of the world around me if off by 3 degrees, everything is on an incline

Muscle cramps and spasms continue.

Rise in sitting Heart rate to above 100, and blood pressure. Occasional pain in chest. On and off low grade fever. Extreme fatigue, lack of energy.

Slight fever 100.7, pain in chest. Heart rate between 98-146, fatigue

Diarrhea, joint pain in knees, FATIGUE

Horrible pain radiating down my right leg.

Loss of balance

Fatigue

Tachycardia

Greater fatigue than usual

Visual disturbances, Lord hissing in my ears

Tachycardia, HR between 125-150 all day

So much fatigue...

Muscle spasms/ pain in shoulders, good, knee and lower back

Joint & middle pain. Mostly right side. Shoulder hip and knee

Muscle/ joint pain is increasing

Rash papular, Lethargy and Tenderness

Y4K-66547-25625

Runny nose

My axillary lymph nodes are tender and enlarged on the side I got the vaccine (left)

Swollen and tender axillary lymph nodes on the side of vaccination (left)

Swollen and tender axillary lymph nodes on the side of vaccination (left), improving

I have a rash on my arm at the site of the injection. It showed up the day after my last check in.

A new follicular/papular rash occurred all over by body. (possible hot tub rash) but its my own hot tub and have never experienced this before.

Tested positive for COVID in January 2022 At that time, I had a fever, was coughing, congested, lethargic , and achy. Currently I still have a mild cough, all other symptoms resolved.

Parosmia, Sleep disorder and Lethargy

Y4L-11075-18795

No

Pain where shot was given still.

Still pain in the arm.

Pain in arm is a little better

Pain in the whole arm that shot was given

Arm is a little less painful.

Arm still hurts after two weeks.

Arm hurts still. Not able to sleep as well.

Shoulder and upper arm still hurts. Wakes me up at night. Calling dr tomorrow.

Arm still hurts mainly in shoulder area.

Fatigue

Arm a little more sore last night.

My vaccination arm still hurts off and on. Wakes me up at night sometimes.

3rd Vaccine given about a week ago. Fever chills headache lethargy weakness for about 24 hours. Couple days of decreased energy. Good now. Arm sore about 24 hours

Sick for couple days negative home test but felt like mild covid

Side effects from booster. Chills fever malaise sore sm

Headaches

Headaches once in awhile.

Sensitivity to weather change, Systemic lupus erythematosus and Limb discomfort

Y4L-19587-29562

Pain in neck area, shoulder and wrist joints

I have SLE w/symptoms primarily controlled w/hydroxychloroquine

Mild/Moderate fatigue and mild muscle aches

The pain is in my arm and really is not pain but mild soreness. To me there's a difference between pain and being sore. Might consider adding in the future.

Knee joints aching BUT cold front moving in as well.

Fatigue, stuffy, runny nose, mild headache.

Chest feeling heavy and becoming short of breath with minimal exertion. Been going on off and on since received the vaccine. Havent sought medical care but may be getting close to it.

Warm forehead and around eyes. Fatigue not as bad as previous days

Headache, fatigue, insomnia

Hippus, Hypoesthesia eye and Tunnel vision

Y4L-20406-70466

This is the first check in:dry coughshortness of breathchest/lung painimpending doomdizzyjoint painweaknessnauseahand/feet/facial numbnessfacial rednessheadachefeverfeeling as if something is stuck in throat

Neurological symptoms. Headache, numbness, nausea, dry heaves, urinary retention, episodes of extreme weakness which cause difficulty in swallowing, talking, moving. Numbness to entire body, but worse in the left side. Tunnel vision. Hippus. Currently hospitalized at (b)(6) in Burlington Vermont

severe constipation, no urge to pee or poop, severe abd pain, neck and back pain, left arm heaviness, left sided numbness, difficulty in walking, pins and needles in right arm, burning right foot, hippus, dizziness, left eye numbness, chest pain, etc Neurology

I have had 120+ episodes of severe weakness/ fatigue that leave me unable to move, speak, swallow at times. Sometime I can speak but it is very slow. Episodes last 5 seconds to 1.5 hours. Severe bone pain, chest pain, shortness of breath, ribs spasms Neurologist/immunologist

Right sided numbness

I mostly had left sided numbness before. Now I have intermittent bilateral hand, arm, feet, numbness - to the point where my left hand is so numb its hard to make my left hand function properly, auras, Hippus (objects pulsate at me at times) Neurology, immunology, counselor

Death, Seizure and Cerebrovascular accident

Y4L-26568-15863

(b)(6) suffers from frontal temporal dementia. She had 2 seizures this morning. They may be strokes or epileptic type seizures shes had before. Not sure if they are related to the vaccine. She has suffered with this condition for 12-13 years.

Seizures seem to have ceased.

Probably end stage frontal temporal dementia. Hospice

Joyce passed away March 14, 2021.

Joyce passed 03/14/2021 Trip to funeral home.

Joyce died!

Clostridium difficile infection, Ophthalmic migraine and Paresthesia oral

Y4L-28246-13420

Tingling and numbness in my arms and legs. My regular PCP has Saturday hours

Pins and needles in arms and legs.

Tingling and numbness in extremities

Tingling and numbness in my extremities

Still have tingling and numbness in my extremities

Tingling in my extremities like with the first dose

I have had 5 ocular migraines since my injection

Heart palpitations. Currently wearing a 30 day Holter monitor. And I was recently diagnosed with C diff. Doctor office for palpitations

Urinary tract infection, Nausea and Arthralgia

Y4L-28463-29432

All reactions very mild

Plantar fasciitis Ive had since before getting vaccine has been very sore for much of the last 24 hours.

Got a knee injury digging. Pain started day 10 after vaccination, day 4 after digging. Is it worse due to a late vaccine side effect?Have had some fatigue this week but vaccine effect or tired from pain of knee injury is difficult to determine.

Dizziness and nausea probably side effect from a medication for an unrelated condition.

Contracted a UTI about a week after vaccination was administered. Office visit with pcp team member

Hypnic headache, COVID-19 and Headache

Y4L-39985-94348

I did have a headache at about 3 am today but think it is unrelated to the vaccine as it is exactly the type and severity I have been experiencing roughly once every three or so weeks for the past several months.

Covid Home health nurse administered monoclonal antibody treatment.

Hypnic headache on Oct 13, 2022. Woke up to a severe headache at 0415 hrs and blood pressure was recorded then at 171/91. Treated at emergency room and all tests normal; BP medications adjusted and are being monitored. See above

Breast tenderness, Cardiac disorder and Dysmenorrhea

Y4L-77589-83295

Ibuprofen has helped with symptoms.

Like the first vaccine dose, the second has also triggered my menstrual cycle. Like the first time, my menstrual pain is significant.

After the 2nd vaccine shot, I have had breast tenderness, some muscle pain/weakness. I also started my menstrual cycle within 48 hours of each vaccine. However, after the first vaccine I felt like I had more mental clarity and energy after 1 week.

I am having issues with my heart.

Again, as with EACH vaccine dose, I started menstruating the day after my shot..

The vaccine has triggered my menstrual cycle.

The vaccine triggered my menstrual cycle. Having pain.

The vaccine triggered my menstrual cycle.

The vaccine like all previous doses, triggered my menstrual cycle.

This vaccine, as with the previous vaccines has triggered my menstrual cycle. Again, it is not my time of the month.

Edema peripheral, Neck pain and Lymph node pain

Y4M-27425-61714

Pain and swelling under armpit of vaccinated arm

Underarm pain and swelling under vaccinated arm

Swelling under vaccinated arm/lymph swelling

Under vaccinated arm lymph swelling

large lymph swelling under vaccinated arm, sore neck

Large painful lymph swelling under vaccinated arm

Huge lymph swelling and pain under vaccinated arm Pediatrician

Large and painful lymph swelling under vaccinated arm

Large painful lymph swelling under vaccinated arm/armpit

Lymph swelling and soreness under vaccinated arm

Lymph reaction and discomfort under vaccinated arm

Hypophagia, Retching and Systemic lupus erythematosus

Y4M-30138-92824

Having a lupus flare. I hurt in all joints and many large muscles. I threw up several times this week. I am eating some today.

Metallic taste about 5-10 minutes after injection lasted about five minutes

I have lupus so its hard to know what is from the vaccine or lupus

I have Lupus and frequently get multiple migraines when sick

So nauseous and retching and migraines I stopped eating and drinking for three days. Then I drank like 6 ounces of water on day four. A bit more water the next day. The next day I started eat some soup. Now today I am eating but still having to take.

My stomach hurts anytime I eat. I have to take nausea medicine and stomach and intestinal muscle relaxer. Just to stop me from throwing up everything.

I still throw up too often. Again yesterday and today I have drank per day less than 16 oz. and a few tiny bites per meal.

Very low blood pressure. Spent 13 days in hospital.

I just feel lousy. I'm achy and tired and nauseous. Each Moderna injection has made me feel lousy for about a week or so.

Libido decreased, Breast swelling and Body temperature increased

Y4M-91503-78552

Loss of appetite

After I took a shower last night, there was redness about the size of a tennis ball around the injection site. Also my lymph nodes under both armpits are slightly swollen, as well as the tissue in both breasts.

Still slightly swollen lymph nodes in each armpit, and breast tissue.Every now and then its a little tender under the armpit on the side the vaccine was given.

Still swollen lymph nodes

Lymph nodes under armpit still slightly swollen

I had a fever of 100 the day after my booster. Also had fatigue and nausea on that day

Swollen lymph nodes under breasts

Swollen lymph nodes; decreased libido

Diarrhea

Swollen lymph nodes under armpit

Swollen lymph nodes

I received the Pfizer bivalent booster Set. 28th, after which I had chills, fever, insomnia, fatigue, and sore arm

Pruritus genital, Abnormal menstrual clots and Dysphagia

Y4N-26312-82737

Have had a slight headache all week

I did not have chills today, but After I reported yesterday, I ended up with a fever of 100.4 for about 2 hours. Then it broke and hasnt come back. I also had chills before the fever came on for about an hour

I dont know if feminine itching would be considered a symptom of the vaccine, but that has been an ongoing issue since the shots- May not be related

Tenderness in my armpits

Swollen gland right side. Can feel when I swallow

Swelling and tenderness in left arm pit. Also, I had COVID On June 14 and didn't have a space to report it.

My left arm pit is still swollen

Increased blood clotting in menstrual cycle - May or May not be related Ultrasound

Swollen glands under chin

Sore throat and headache

I got a cold

Sitting disability, Limb mass and Dysstasia

Y4P-29823-56204

Loss of appetite for the last 3 days.

Lost appetite for 3 days

Mild rash on stomach

Jaw pain

Chronic Joint & muscle pain throughout entire body.

Continued Joint & muscle pain & headaches

Continued chronic joint pain & muscle spasms, & stomach upset.

Chronic muscles & joint pain in legs, hips, knees, feet causing difficulty walking, sitting & climbing stairs; Headaches; stomach issues.

Chronic pain in both legs, knees, feet, lower back, butt, sciatica, both arms, & headaches. Difficulty climbing stairs, driving, sitting, standing, & walking. I have Fibromyalgia & Dr. thinks the vaccine caused a flare up. MRI & Bloodwork & pain medication.

Addtl joint & muscle pain: legs, feet, knees & low back, right arm deltoid muscle & AC joint very painful; dont have full use of arm. The pain throughout my body keeps shifting to multiple areas. Both legs cramping severely daily. Head Physical Therapy

Continued chronic back, legs, knees, muscle & joint pain. Additional Severe Shoulder pain. Could not use my arm. In person doctor visit & MRI

Upper body, both arms/shoulder severe pains radiating sharp pains down arms through hands. Left arm worse. Lump on right upper arm since vaccine still there. Top of Left leg near torso is weak, periodically collapsing.

Fibromyalgia, Myalgia and Fatigue

Y4P-81560-47980

I have fibromyalgia so my usual symptoms are similar to vaccine reactions

I have fibromyalgia so its difficult to judge how Ive felt since my vaccine. I would say my muscle aches and fatigue have been worse since my vaccine.

I have fibromyalgia

I can't seem to get my fibromyalgia back under control, but don't know if it's vaccine related.

Still experiencing a fair amount of fibromyalgia pain and aching.

I have Fibromyalgia

Fibromyalgia symptoms are back to the usual pain, aching and fatigue.

Bundle branch block left, Hypoacusis and Cardiac flutter

Y4Q-15980-91392

For about 1.5 hours, my head felt a bit "numb". My chest felt "occasional flutters

Feeling hot

Yesterday for 3-4 hrs, upon exertion, I had heaviness in chest, shortness of breath and felt fluttering/increase heart rate. Normal resting pulse is 63 - pulse up to 87 when experiencing symptoms. Relieved by rest.

Heaviness and fluttering in chest. Mild shortness of breath.

Chest fluttering, heaviness, and short of breath. Went to ER had EKGs, chest x-ray and labs. Diagnosed with palpitations and left bundle branch block in EKG. . To f/u w/cardiologist.

Sore throat

Covid 19. Sore throat, fever, body aches, nasal stuffiness and drainage, ear pain, vision changes, dizziness, decreased hearing, cough. 4d after testing negative, experienced rebound w/same symptoms but worse intensity.

Abdominal pain and vomited last night.

Injury, Ear swelling and Fall

Y4Q-19833-06600

Was already fatigued

Note that my normal temp is usually below 98° F

No new symptoms, but increased fatigue and aches, especially today. No fever detected. I plan to go to doctor soon. I suspect sinus or ear infection (had mild symptoms before vaccination).

Worsening pain in back and foot, brain fog and fatigue.

I don't remember when you last contacted me. I developed some numbness and pain in late May, it was treated with NSAIDs and PT and is better. Direct consult with NP and orthopedist

swelling behind right ear which could be related to dental work 4/19 also additional joint aches and muscle soreness (but I've had some extra physical exertion)

nausea, diarrhea, could have been mild food poisoning

diarrhea, low grade fever

Diarrhea, nausea and sleepiness, but I am on medication that may cause these symptoms.

rea around injection site is hot. But headache and other pain is apparently a flare up of other conditions.

Abdominal pain pre-existing

I was injured by a fall after a vacation during which I walked a lot. I don't think it has any connection to vaccinations Referral to ortho

Blood pressure inadequately controlled, Tooth fracture and Osteoarthritis

Y4Q-27366-33422

I have some osteoarthritis which probably explains the joint pains which are bad in my left knee. My left knee is really bad. This has nothing to do with my vaccine which has not made the pain better or worse. .

Diarrhea, stomach pain, acid reflux

Had total knee replacement surgery. Not related to Covid or vaccine

Tachycardia. BP meds not working. Visit to PCP

Knee pain and swelling. Broken tooth

GERD. Not related to Covid vaccine

Rash, Injection site pain and Pyrexia

Y4Q-53719-00994

I also had little symptoms (ache, felt off, low grade fever) 24 after my shot

this past Saturday, after I showered, saw these 2 looking rash things on the same arm I had my shot. It wasnt raised or itchy tho. Sunday morning wasnt there anymore. But last night again after I showered it reappeared, but this morning it was gone. So thought that was weird. I emailed my doctor just to make them aware. Ill see if it comes back tonight after I shower. Maybe its a delayed symptom. But heard it might be covid arm as I saw on the internet

I forgot to mention last week, exactly 2 weeks after my 2nd vaccine, I had a dull pain feeling on the area where the shot was done and then it went away. Not sure if it was from working out or from the vaccine.

Heart rate increased, Fatigue and Headache

Y4Q-68854-27626

Feeling very tired

For the past two days I noticed my heart rate has increased by 20bps. This did not happen with the first dose. There was no change with BP. I typically measure my BP everyday

Increased heart rate continues for the third day in a row. No other symptoms or issues. My Basel HR has always been about 60 - 65 BPM for the past decade+. For the past three days the HR is around 85 BPM. HR measured early in the morning everyday first thing without any eating or drinking or physical activity

HR is still higher at around 75 BPM. However has come down compared to the past three days in the mid 80s. My basal HR has always been in low 60s

Once again my heart rate is in mid 80s today. Otherwise no symptoms

HR has come down to 75 from mid 80s. However it is bit high from my typical low-mid 60s

Severe headache and tiredness after the first booster

Severe headache and tiredness

Lower respiratory tract congestion, Sinus congestion and Heart rate increased

Y4Q-85755-82810

Sneezing and runny nose started yesterday mid-day

Some body aches and weakness for two days last week.

Swollen and tender glands in arm pits, especially under the arm that received the shot

Tenderness and swelling in glands in arm pit under arm that received shot

My resting heart rate is still elevated by approximately 5 bpm (5-10%)

Elevated resting heart rate by 5 bpm

Persistent bronchial and sinus congestion, fatigue, and some muscle aches. Kids tested positive for Covid-19.

Currently have a cold (not COVID)

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