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Their Stories

What v-safe registrants wrote to the CDC after their Pfizer or Moderna shots, in their own words. Each card is one person, with all of their free text. This page shows only the longer stories: the 116,000 people who wrote at least 400 characters in all. The text is as the CDC released it, except that email addresses and phone numbers are hidden. You get a random set of these people on every visit.

Shuffle

Tongue disorder, Hyperacusis and Hypoesthesia oral

Y3N-18729-39774

Pulse was high, 122 while laying down.

My jaw and below my ears hurt.

Dead area on my tongue. Smelling things that aren't there.

Sweating all night and most of day. Tongue still dead in center.

Dead area on tongue, phantom smells, eye pain and my ears are sensitive to certain sounds.

Tongue still numb

Tongue is numb. Eye pain.

Cramping, eye pain, strange pain and sound in ears, coughing, strange tastes and smells,

Ears making strange sounds, still phantom smells and tastes, tongue still numb, nose tingles like ur gonna sneeze but dont.

Eye pain. Tongue still numb. Strange taste. Phantom smells. Brain fog..

Brain fog. Tongue numb. Phantom smells.

I had COVID again in December 2021

Mastectomy, Neoplasm malignant and Breast cancer

Y3N-34515-02059

Mind feels a bit rummy

A little woozy and off balanced

Balance problems

I had cancer removed Feb 24. Been feeling good, but the last 2 days I have been nauseous, weak, sleeping more. Just feel funny/off. If still feel bad on Monday may go to doctor

Tired, off balanced, and sometimes weak. Did have cancer remove, felt for a week. Then not ever well

I had breasts removed do to a repeat cancer. It makes me feel sick

Unbalanced

Erythema of eyelid, Skin irritation and Periorbital swelling

Y3N-74455-72324

Watery eyes

Shooting pain in elbow opposite arm from injection

Swollen left eye, some one that was watery after the vaccine

Swollen left eye

Swollen red left eyelid

Swollen eye is better. Still watering. No sign of infection or itching. Skin around eye is still irritated. Swelling of eyelid almost gone.

Left eyelid is still red/pink and. No longer swollen.

Left eyelid and under eye no longer swollen. Skill is still pink

Injection site warmth, Brain fog and Nasal congestion

Y3P-13082-22825

Tiny bit of a burning sensation at the injection site. It also felt a little warmer to the touch than my other arm.

Ive had a very low grade headache every day since getting my shot. At first I didnt think anything of it, but now wondering if I should have written it down. I thought I was just tired.

Brain Fog

Not sure if its related to the vaccine, but Ive had a slight stuffy nose since the day after my second shot.

Slight cough and ongoing headaches

Cataract operation, Neck mass and Tenderness

Y3P-18331-47149

I have developed a lump on the left side of my neck about the size of a BB. Its only slightly tender to the touch; not hot or red. I have an appointment with primary care Dr. tomorrow on Match 19. I have felt other random sensation s that I havent felt before that dont hurt, but like a vein is a little constricted. Asked my chiropractor & eye surgeon when I went for follow up appointment after cataract surgery yesterday

Lump on my neck Visit to my primary care doctor

Lymph node on neck still swollen & tender

Quarantine, Impaired work ability and Arthralgia

Y3P-27335-13584

Sore joints primarily knees. Maybe unrelated?

I have a 4 month old baby that has had me up all hours of the night this recently. It is hard to know if Im extra or normal fatigued today.

My 4 month old baby also had me up three times last night and then I had to work today. That could be to blame for some of the fatigue.

Got covid- wasn't sick enough to miss work but had to because of quarantine. Just to explain my answer to the next question.

Asthma, Hypertension and Paresthesia

Y3P-31418-44707

Pain in lymph nodes in arm pit

Pain in lymph nodes in underarm

Pain swollen lymph nodes in underarm

Swollen lymph node in underarm of the arm I got the vaccine in

Swollen lymph node in underarm

Frequent headaches, many more than usual.

Mild tingling in arm and hand

Have had a headache for a week that hasn't went away and been fatigued, get winded easily at times

Headache still, dr said blood pressure is high

I got covid in January so now I have increased fatigue, headaches, and asthmatic problems

Stress at work, Miliaria and Migraine

Y3P-33527-43266

Sore throat, but that usually accompanies fatigue for me and the weather shifted drastically colder today than yesterday so this is probably unrelated

Small (heat?) rash on opposite side as injection. Chest muscle pain. Unsure if related to vax.

Chest pain still happening. Possibly injury from fat cat stepping on breastbone lol

I've been having mild headaches, sore shoulders/neck for a few days. Probably work related stress though.

Nausea, headaches

Migraines, diarrhea, fatigue

Dental discomfort, Oral discomfort and Hyperesthesia teeth

Y3P-71326-98675

Dry mouth, burning mouth, two mouth sores - this started on day 4, today is day 11.

Dry mouth, burning mouth getting worse and not subsiding. Dentist

Like after the first shot, I am experience oral symptoms: burning, tingling, dull teeth, sensitive fillings, strange taste in my mouth, dry mouth. It is non-stop only alleviated when eating.

Still some oral symptoms but much better than yesterday

A bit tired, insomnia, generally unwell but not disabling

Very low resting heart rate, daily average 62-64 (normal for me is 68-71), at rest sometimes dipping to 38-42. Normal BP and temperature. Anxiety, heart palpitations, no correlation with other factors that I can tell.

Low resting heart rate. Daily average dropped from 71 on day of first vaccine to 58 5 weeks later. My typical average is 69. Heart dropped as low as 38 during rest . Face to face visit with my GP. Awaiting blood results and possible referral to cardiologist.

Still having low heart rate, plus severe palpitations and shortness of breath. Waiting to schedule a 7-day EKG. Waiting to schedule

Lymphadenopathy

Y3Q-19021-45901

Slight swelling in lymph nodes under armpit and by collarbone on the same side as injected arm

Swelling in lymph nodes under armpit and collarbone on the same side as injection site arm

Slight swelling along collarbone lymph node on same side as injection site arm

Swelling in lymph node along collarbone on same side as injection arm, but no pain when pressure applied

minimal swelling in lymph node by collarbone

Minimal swelling in lymph node along collarbone

swelling in lymph nodes under armpit and collarbone on the same side as the injection site

swelling in lymph nodes under armpit on the same side as the injection site

slight swelling in lymph nodes under armpit and collarbone on the same side as the injection site

slight swelling in lymph nodes by collarbone on the same side as injection site

Post concussion syndrome, Concussion and Sciatica

Y3Q-22404-21454

Dizziness, fainted after the shot when administered yesterday

Dizziness

Persistent dizziness and ringing in ears (especially left ear). Feeling of fullness. Has been going on for a week but I didnt type it out when the other symptoms were more noticeable

Experiencing post concussive syndrome after fainting following receipt of the first dose of the vaccine.

Continuing to see a neurologist after concussion from fainting after the first dose

Neurology

Still recovering from concussion after fainting from first shot

Heavy menstruation (never experienced before now) and painful sciatica

Ear swelling, Thyroid disorder and Pain of skin

Y3Q-22664-66355

My scalp is sore and itchy My general doctor

Sore scalp. Tender to touch since monday.

Sorr scalp and headache. No sleep Phone call. Need to follow up with allergist. Scalp is itchy and sore. Have been told to not get second shot till i see an allergist. Today i have a headache above temples. Wish i never got the shot.

Sore throat alllergies

Sore scalp!! Went to er on friday night because of intense headache. My scalp has been sore since I got the shot. Have to go to allergist now. Thanks !

Sore scalp

My right ear swelled up and went numb last tuesday for 7 hours. Went to an allergist last wed to see if i can get my second shot. Have been to 4 doctors since my first pfizer shot

Anxiety! about getting my second shot. Confusion from doctors has what to do next. Some say not to get second shot and some say to get it. I do not want to suffer another week of scalp pain and heat followed by numbness of right ear. Allergist. Recomended to see neurologist next

Covid in January Followed by sinus infection Then elevated thyroid

Tooth fracture, Rash and Back pain

Y3Q-23193-30632

Tooth piece broke and fell out

Rash on forehead. Back pain.

Have runny nose Coughing Still have rash on forehead A home CoVid test was negative

I am over my coughing from last month. I still have rash on forehead as reported October 30; but it is worse and itchy and flaky. I am going to see my doctor in January. A zoom friend of mine also got a rash after Covid shot. Is this common? ScHeduled PCP office in January.

Edema peripheral, Rash and Lymphadenopathy

Y3Q-24579-31037

Lymph node under my arm is swolen

Swollen lymph nodes right armpit

Swelling of lymph nodes at right armpit

Lymph nodes swelling right armpit. Same arm i had both shots in

Swelling lymph node right armpit. It gets better in the afternoon but comes back overnight

What i thought was bad acne behind my ears is actually a rash. Still have swollen lymph node between right armpit and chest. Mostly under armpit

Still have rash behind ear and some swelling under right arm pit

Alopecia areata, Iritis and Uveitis

Y3Q-25939-82388

Redness and itchiness at the vaccination site.

I have a sinus infection, dizziness, and lots of head and facial pressure- likely unrelated to the vaccine.

Tinnitus- constant and high pitched in both ears but R>L.

Right ovarian cyst that required surgical removal.

Alopecia areata, ovarian cyst Visit to PCP, dermatologist, OBGYN

Chest tightness and leg pain Went to urgent care/freestanding ER for chest tightness and an asthma flare up. I also had leg pain and have a clotting disorder, so they did a CT scan and ultrasound. They didn't see any clots or anything concerning, but my D-dimer level is elevated

Pain to left leg, tingling and numbness to left arm and leg without any weakness or loss of feeling

I've been having numbness and tingling to my left arm and leg, but my doctor thinks it's more related to the physical therapy session I had on that same day.

Numbness and tingling to my left arm and leg have continued, and I am now also having some numbness on the left side of my face.

Iritis in my left eye

Uveitis/iritis that's worsened over the past few weeks. Involved pain and pressure to left eye.

Spinal pain, Hypoesthesia oral and Neuralgia

Y3R-14685-38680

Numbness, tingling in extremities

Horrible spine pain that's gotten worse over the past 3 days. Numbness in the extremities is spreading further up them.

Cheek numbness in addition to the tongue and lip numbness, upper leg numbness in addition to the feet and finger numbness, spinal pain

Spinal pain and feet numbness are worse.

My numbness in my feet and legs are getting worse to where I now have neuropathic pain. My back spinal pain is worse.

Burning sensation, muscle cramps, worse tingling Neurologist

Oxygen saturation decreased, Body temperature increased and Productive cough

Y3R-16357-47881

Queasy stomach

Slight queasiness, decreased appetite

1 1/2 weeks : GI distress 1 day, followed by 1 day odd headache, followed by a week of productive cough, lower O2 sat of 90, mild sob. No temp elevation.Treated w ibuprofen, guiafenesin. Resolved , no apparent residual effects. Suspect covid.

Bad head cold w nasal congestion & fatigue 3 days

Bad cold! Cough, body aches, nasal congestion, fatigu, elevated temp x 3 days, possible rsv exposure

Muscle tightness, Musculoskeletal stiffness and Injection site pain

Y3R-28820-76657

Yesterday I felt a little sick after the shot. Most significant was pain in arm around injection site. I do have Multiple Sclerosis and do three Rebif injections per week. I did an injection last night, and had zero complications, so all is good.

Slight pain in arm and shoulder by injection site. Not bad.

Last night I felt bad, but slept late. Felt good when I got up. Now at around 4 pm, I am feeling a little stiff or tight in my shoulders and neck.

The headache was probably from pressure change and sinuses.

Body temperature decreased, Restlessness and Poor quality sleep

Y3R-31736-58847

tenderness at injection site - not to the level of "pain

I felt slight feverish but did not have a fever. My temp went down by about 1 degree - this happens some times when I'm sick. I slept in and slept several hours this afternoon.

Much less fatigue than yesterday.

DAY 1 - 4/8: Much more injection site discomfort and within 2-3 hours. Day 2 - 4/9: hard to lift arm. Restless sleep due to arm discomfort, a bit sweaty but no fever overnight. . Tired. Day 3 - 4/10: temperature dropped to around 97.2 for several hours then back to normal.

Anaphylactic reaction, Anxiety and Brain fog

Y3R-60797-18377

Upon injection I went into anaphylaxis reaction I wasnt well enough yesterday to fill this out

Definitely anxious and that seems to be affecting my being able to get deep breaths

Lightheadedness at times no stamina headache in lower right side back of head

Anxiety no stamina foggy brain

Severe fatigue,tinnitus, headache

Extreme fatigue and chronic pain everywhere

Bouts of total fatigue that won't go away. This vaccine has caused me a lot of problems. Homeopathic Dr to detox

Amenorrhea, Weight decreased and Confusional state

Y3R-61851-96452

Dizziness

Dizziness and Congestion

Dizziness, nausea, and fatigue

Dizziness and confusion last night

Dizziness, and confusion

Dizziness, change in menstrual cycle, and loss of appetite

Lack of appetite. Checked into the ER last Sunday.

Dizziness, loss of appetite, and weight loss

Rapid weight loss, and loss of appetite

Lack of appetite, weight loss, and dizziness

Appetite loss, weight loss, menstrual changes

Weight loss, migraines, and chills

Difficulty breathing, congestion, fever, dizzy, and fatigued

Missed period

A month and no menstrual cycle

Cessation of menstrual cycle

Cessation of my menstral cycle for 3.5 months.

Muscle strain, Facial pain and Vision blurred

Y3S-31489-52710

The day of the shot, I felt a little lightheaded. It went away about 2 hours later.

Blurred vision in left eye since the shot.

Blurred vision left eye.

Blurred left eye vision better today.

Blurred vision

Lower back pain left & right cheek area

Lower back pain.

Lower back pain feels like my back has been strained.

Lower back pain

Very swollen lymph nodes along my neck near and around my left clavicle. The swollen lymph nodes are massing together. There's pain in my left arm.

Ventricular extrasystoles, Disturbance in attention and Gastroesophageal reflux disease

Y3T-13135-60686

Itching and red rash at injection site. Also slightly tender. Not serious. Using cortisone for the itch. Seems to help.

I am fatigued most afternoons. Less energy to get things done. Not severe, just need to take naps.

Mild to medium head aches. Difficulty concentrating. I feel like im a little off my game. Can't explain, just don't feel normal.

Sudden gastrointestinal discomfort. Horrible acid reflux. No changes in eating habits or vitamin supplementation. No change in stress level.

Mild heart palpations, diagnosed as PVCs.

Diabetes mellitus, Asthma and Heart rate increased

Y3T-13633-35846

Uptick to asthma, needed xopenex once today. Wheezing, not severe, and was happening BEFORE injection of vaccine. But for a day or so no asthma and now it appears to be mild. Also pulse appears a bit faster >80 but could be the Xopenex. I just found out today that my husband is positive for COVID. Heis having monoclonal injection today at (b)(6) in NYC. Will call DOH tomorrow to see if I need to be tested.

However, although I checked tiredness, my husband was diagnosed with Covid yesterday and it's very tiring trying to care for someone who is isolated in quarantine. This may have absolutely nothing to do with the injection.

Palpitations, back pain

Asthma

Coughing sneezing sore throat diarrhea

Diabetes

Genital rash, Lichen planus and Pain in jaw

Y3T-22880-12247

Lymph nodes in neck are slightly enlarged and I feel like Ny body is fighting something off

Jaw pain very mild may not be related

Itchy rash on chest, underarm area and on top of abdomen by bra line. Not sure if it is related but its been there ever since the 2nd vaccine was given.

Itchy rash on chest, abdomen, under both arms and private areas. Not sure if its from vaccine or new laundry detergent.

Rash on my chest , underarm area, abdominal area, elbows and private area not going away and appearing in a new place (elbows). I got my 2nd shot on January 27th and the rash appeared after that.

Diagnosed with Lichens Planus after second dose of Pfizer vaccine. Diagnosed by a dermatologist

Platelet transfusion, Chronic myeloid leukemia and Thrombocytopenia

Y3T-25209-08893

I have Chronic myelogenous leukemia (CML). I have been taking Bosutinib 150mg and my platelets have been low, fluctuating between lower 30s to 60s. On Jan 20, I took the Moderna vaccine. Two days later, on 1/22/2021, the platelets dropped to 11. There was no bleeding symptoms. Nevertheless the doctor asked me to infuse a bag of platelets today. I dont know if my thrombocytopenia is related to vaccination?

Decreased platelet count

Balance disorder, Atrial fibrillation and Arthralgia

Y3U-16874-20686

Not dizziness or vertigo, just feel a little off balance occasionally.

I get bad bilateral knee joint pain for a day or so, then it goes away. Sporadic.

Knee join pain,diagnosed with atrial fibrillation. After receiving the booster in December, for three weeks I had terrible congestion and every joint in my body hurt. It got to the point that I got a Covid test just to make sure I didn't have Covid.

Lymphadenitis, Menstruation irregular and Chest discomfort

Y3U-96001-62702

Slight heaviness in rear lungs

The chills that I experienced were short term

I have experiences continued unusual achy body feelings since the vaccine that have not gone away but have intensified.

I have had a cervical ablation and have not had a monthly womans cycle for 8 years. I had one beginning yesterday. I know that this could be coincidental but I thought that I should report it because I coincidentally had my first one in 8 years. I have been in contact with my womans health physician and am awaiting a call back to see if there is a need for a visit.

Feeling hot, Abdominal discomfort and Vomiting

Y3V-13409-23801

Got very hot and felt a little sick at stomach for 45 min

Back pain not sure if its from vaccine

This happened on Sat not today

Just Back pain

Low back pain not sure if from vaccination

Lower back still hurts some not sure if its from vaccine

Still low Back pain

Got sick yesterday. Felt dizzy and sick at my stomach. I vomited last night. Not sure what caused it except maybe I got overheated

Some arm at times from site where I got COVID vaccine. Not all the time. I have had to see a pulmonologist recently Not sure why yet. They are taking X-rays etc. Pulmonologist

Just sore arm where I had received vaccine. It comes and goes. Not too bad. I have asthma and Dr testing for bladder or kidney problem but no results yet. May not be related to vaccines just stating differences in my health. Primary doctor

Papilledema, Furuncle and Visual impairment

Y3V-22720-81091

Dizziness

My skin feels like Im boiling inside and Im having a hard time staying asleep

Night sweats

Optic nerve swelling, Ive been having vision issues for about a month but its been worse recently and while I have 20/20 vision they did find swelling of my optic nerves and Im getting an MRI on Saturday for it.

Benign intercranial hypertension

Sinusitis, wet cough, asthma, increased allergies

Sinusitis and nose bleeds

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